Previous Thread
Next Thread
Print Thread
Page 3 of 4 1 2 3 4
Gary #126852 12-27-2010 04:19 PM
Joined: Aug 2010
Posts: 25
groc25 Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Aug 2010
Posts: 25
Thank you Gary. I really do appreciate your information. It makes the car ride to my doctor for my three month appointment more bearable and not so worrisome. In fact I appreciate all the words and kindness from everyone on here. Thank you so much. I hope that someday I can repay everyones kindness.


Diagnosis Date - September 10, 2010
Diagnosis - SCC, T1N0M0, Well Differentiated.
Surgery to remove infected gums and three teeth.
Clear margins and teeth.
Life goes on. My 4 kiddos demand it and keep me sane.
My wake-up call and I listened. Have more listening to do.
groc25 #126871 12-28-2010 10:07 AM
Joined: Aug 2010
Posts: 25
groc25 Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Aug 2010
Posts: 25
Well I went to the doctor and he said my mouth looked good but he had a CT scan done. He called this morning and asked me to come in again this Thursday because of the results. I am so freaking out right now. I was okay but I am so scared now. I am awaiting to hear from him as to what was on the scan.


Diagnosis Date - September 10, 2010
Diagnosis - SCC, T1N0M0, Well Differentiated.
Surgery to remove infected gums and three teeth.
Clear margins and teeth.
Life goes on. My 4 kiddos demand it and keep me sane.
My wake-up call and I listened. Have more listening to do.
groc25 #126886 12-28-2010 01:44 PM
Joined: Sep 2006
Posts: 1,357
Likes: 5
"OCF Canuck"
Patient Advocate (1000+ posts)
Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,357
Likes: 5
Who wouldn't be scared after receiving a phone call like that!! I can tell you to 'try not to worry' but I know that isn't going to happen. I will however tell you to keep busy, the time will pass, and consider it good news that he didn't say something like "I need to see you immediately in my office".

Keep us posted. Thursday will come before you know it.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #126887 12-28-2010 02:00 PM
Joined: Aug 2010
Posts: 25
groc25 Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Aug 2010
Posts: 25
Thank you Donna. It is people like you that I really like coming to this site. It really helps me put things in more of perspective. I figure it is about the lymph nodes in my neck. The scan three months ago he said he found a couple of small and enlarged lymph nodes. I imagine that is what it is about. Thank you very much for the information.


Diagnosis Date - September 10, 2010
Diagnosis - SCC, T1N0M0, Well Differentiated.
Surgery to remove infected gums and three teeth.
Clear margins and teeth.
Life goes on. My 4 kiddos demand it and keep me sane.
My wake-up call and I listened. Have more listening to do.
groc25 #126948 12-29-2010 03:44 PM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Many doctors won't dicuss scan reports over the phone. Often they require further dialog between the reading radiologist and the ENT or H&N surgeon. The scan is only a small part of the total diagnostic package anyway. The gold standard is actually the physical exam with the ENT (aka direct visualization).

None of my early MRI's (the entire first year) were very good but eventually all of the suspicious areas dissapeared. So they're probably being overly cautious and this is typical early on.

Try not to freak out.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #127144 01-02-2011 09:58 PM
Joined: Aug 2010
Posts: 25
groc25 Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Aug 2010
Posts: 25
Thank you Gary. My doctor did eventually call and told me that my scan picked up an enlarged lymph node which he was also able to feel. Instead of playing the wait and see game he wanted to do a needle biopsy. I went in for the needle biopsy and he had a hard time finding the lymph node again and when he did find it he said it was noticeably smaller which he said was a good sign. I guess I will know for sure in a couple of days. Thank you for your advice and info.


Diagnosis Date - September 10, 2010
Diagnosis - SCC, T1N0M0, Well Differentiated.
Surgery to remove infected gums and three teeth.
Clear margins and teeth.
Life goes on. My 4 kiddos demand it and keep me sane.
My wake-up call and I listened. Have more listening to do.
groc25 #127155 01-03-2011 06:48 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Was/is there any pain associated with this node?

Were/are you on any antibiotics?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #127163 01-03-2011 12:35 PM
Joined: Aug 2010
Posts: 25
groc25 Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Aug 2010
Posts: 25
Yes there was some pain with it. When the doctor touched as well as myself, it was tender. It wasn't like really bad pain but i could feel it. I am not on any antibiotics right now.


Diagnosis Date - September 10, 2010
Diagnosis - SCC, T1N0M0, Well Differentiated.
Surgery to remove infected gums and three teeth.
Clear margins and teeth.
Life goes on. My 4 kiddos demand it and keep me sane.
My wake-up call and I listened. Have more listening to do.
groc25 #127169 01-03-2011 03:09 PM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Typically there is no pain associated with a cancerous node, just swelling. A painful node can however be indicative of an infection which an antibiotic could solve. Discuss this with your doctor.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #127262 01-04-2011 05:30 PM
Joined: Aug 2010
Posts: 25
groc25 Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Aug 2010
Posts: 25
Thank you David for all of your advice and information. The biopsy came back negative on the node. I am just awaiting for the final CT scan results. My oral surgeon did not see anything else but he wants to make sure. After that I get to start planning for the reconstruction surgery. Thank you and I haope you have a awesome new year.


Diagnosis Date - September 10, 2010
Diagnosis - SCC, T1N0M0, Well Differentiated.
Surgery to remove infected gums and three teeth.
Clear margins and teeth.
Life goes on. My 4 kiddos demand it and keep me sane.
My wake-up call and I listened. Have more listening to do.
Page 3 of 4 1 2 3 4

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5