| | Joined: Nov 2010 Posts: 2 Member | OP  Member
Joined: Nov 2010 Posts: 2 | I'm having trouble figuring out how to use this site,not to puter savy.Would like to ask questions & recieve input from other users.Please help.Can PM me. Thanks alot | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Lisa,
I removed your e mail address as scammers can get it easily. I changed it to Private Message me which they can do within this site and you will know when you log on that you have a PM. This site is very user friendly. Just give it time.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Hi Lisa Welcome to OCF. Please do exactly what you did to write this post. Click on the topic heading and then click on NEW TOPIC by the top left. Most new members write a short intro about themselves and what they are going thru. Ex..just diagnosed with Stage II SCC, beginning radiation next week, or something like that. I have added a few links that will help you along. One is the abbreviations which can take a while to pick up and also a link about the OCF website. Im going to send you a PM (private message) too. That is kinda like an email but it is just on here in your own little mailbox that only you and the other person can read it. To do a PM you click on the person's name that you want to message and a drop down window will open click on SEND PM. It will open into a box to type what you want then click SUBMIT on the bottom. about the OCF website... http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=65994#Post65994abbreviations... http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=38706#Post38706
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Here is a PM I received today from Lisa. Its encouraging to others who are new here and scared. Congrats Lisa!!!!!
Great news!It's not cancer!I am so happy & so relieved!It's a polyp.The biop in his office wasn't that bad either.Thanks to everyone here,especially Christine B.God Bless you all & best of luck to you all.You are in my prayers.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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