#12457 10-06-2007 07:09 AM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: May 2007 Posts: 231 | Well yall, its that time. I am not sure I am ready to go back just yet but my family is about to lose everything. I have no choice but to go back and quite frankly I am scared to death. It has been 7 months. I have doctor appointments that are going to interfere with work and I dont know how all of that will work out.
Yall please keep me and my family in your prayers. Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#12458 10-06-2007 08:33 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | will do Billy good luck honey
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#12459 10-06-2007 09:58 AM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | Billy, One step at a time my friend. We all have to do for our families. Just try not to put off follow-up appointments to long if you can. You know I'm here for you. Did you get my e-mail about the fluoride?
I'll say some good ole irish prayers for you.
Cheers,
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
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#12460 10-06-2007 10:22 AM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: May 2007 Posts: 231 | Yea bud,
I got the email.Thought I responded..LOL Guess not.
Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#12461 10-06-2007 01:20 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: Dec 2003 Posts: 528 | Dear Billy
Eat well, plenty of vitamin B, make sure you get proper sleep each day and remember that trivial chores can wait. Your welfare and that of your family come first.
Let us know how you are. Am thinking of you.
Love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#12462 10-07-2007 07:11 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2007 Posts: 346 | Billy, Don't depair-I too had to go back to work and was not, I felt like, ready for it. In fact, I still had in my peg tube!! I was so afraid I would have to go out to lunch ( my job is to sometimes entertain customers at lunch and schools,etc.) So if was the first day, and I stumbled out that I had to go on some errands at lunch. I rushed home, drank a can of carnation and flew back to work. What a stress. AFter the first week, though, thinks just got back to normal and I try to make doctors apptmts late in afternoon and leave work a little early. They have been so kind to me so far. Had to miss work when I had the peg removed because I was in pain. I hated missing. I don't want to be the poor little girl with cancer that is dying syndrome. I want to be strong.(HAHA that is my weakness) Just take it a day at a time, even an hour at a time sometimes. You will make it and get stronger every day.
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO. Had 14 hour operation which included reconstruction of jaw. Reconstruction failed. Some radiation, no chemo. | | |
#12463 10-07-2007 08:04 AM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: May 2007 Posts: 231 | I still have my peg tube also. I drive a truck and thats what Im hoping to be able to do when I go back. If thats the case I can do a feeding in the truck but hopefully I will be able to eat something. I know its just me being a little anxious and nervous but everyone tells me to get back in the truck and everything will fall right into place. I am also being told by many people including a friend of mine who had oral cancer that the best thing for me would be to step out and get back in my truck.
Helen?... Can you tell me why vitamin B is so important. Im not really up to date so to speak on vitamins and stuff like that.
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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#12464 10-07-2007 09:24 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2007 Posts: 346 | Billy, Everyone told me the best thing was to go back to work and I told them the best thing would be not to have to work at all!! So quit with that stuff!! I take a multi vitamin, and selenium which is important for people with oral cancer. It is very nerve wracking to go back to work and not know how to handle the eating situation. Just rest as much as you can at first. Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO. Had 14 hour operation which included reconstruction of jaw. Reconstruction failed. Some radiation, no chemo. | | |
#12465 10-07-2007 11:00 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: Dec 2003 Posts: 528 | Hi Billy
Vitamin B gave me a noticeable improvement in my fatigue after several weeks of taking it. I take it every day now as well as omega 3 for general health. My doc suggested trying it.
Tough for you with such a physical job and a PEG tube. Have your docs given any advice regarding how to manage and what is important for you?
All the best, love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#12466 10-07-2007 12:37 PM | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: May 2007 Posts: 231 | Debbie, I have got to do something to get out of this house so work would be the best choice here. I get out and earn money for my family too. I have no choice but to go back to work anyway. I dont know if Im ready but our backs are against the wall. Thank you so much for your concern. Helen, I will give the vitamin B a try. I am very fatigued all of the time. I am also depressed and the doctor keeps on trying different meds but to no avail. They all seem to make me feel real funny. I really dont even feel like myself most of the time. I have been taking Centrum liquid vitamins but I can swallow pills now so Im going to give Centrum Silver a shot as recommended by my grandma JAM (LOL). Thank you for the advice and the concern also Helen. Billy
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
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