| | Joined: Oct 2010 Posts: 4 Member | OP  Member
Joined: Oct 2010 Posts: 4 | Out of hospital! Two weeks in hospital with about 4 days in ICU and then the rest in the ward recovering and trying to feed myself to prove to the nurses to set me free...  Surgery went really well. They had to take a bit more of my tongue than they were hoping but i still have the back third which does the swallowing. So happy with that. Put a bit of my stomach muscle in my mouth to act as bulk and assist with eating and speaking. I can speak but have trouble with a few letters but it is really early days yet. Doc said the nodes in the ND were all clear and some of the "cancer" on the MRI wasn't actually cancer. So that was good news. No word on rads and chemo yet, will find out soon. But stoked to be out of hospital. Thats the worse bit in my opinion. Rads is ok, least i get to go home every day. Pain i can handle, depression - which i get from hospital stays - i struggle with. A thank you to all the well wishes. | | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2010 Posts: 224 | Glad surgery went well, now you probably have no lymph nodes left now that they have been removed twice,  . Hoping they are satisfied with surgery and that you don't have to go through more radiation or chemo!! If so, ur a trooper, and already know what it's like, so just fight hard!! I myself am going through a reoccurance scare right now!! Hoping for the best for both of us. Strange that they can pull ur stomach muscle and move to ur mouth, but that makes me feel a bit more at ease. Already had the right half of my tongue removed, and one of the positive areas is my tongue, so i got pretty nervous about that, as i am only 26 and don't know if i could live the rest of my life without being able to eat/talk again. So that gives me a little hope. Glad you are out of the hospital and at home!! Feels so much better to be home!! So, do you live near where lost supposedly happened, hahaha, i kid. Stay strong and fight the good fight!!
25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | David,
I love your positivity and the fight you are making to get better! Keep it up!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Great to hear, David. Wishing you the very best, please keep us posted.
yet another david
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2010 Posts: 36 "OCF Canuck" Contributing Member (25+ posts) | | "OCF Canuck" Contributing Member (25+ posts)
Joined: Nov 2010 Posts: 36 | David well done on showing those nurses you can take care of yourself, they can be a tough crowd to play to!!
I have my fingers and toes crossed for you BIGTIME and will keep you in my prayers for a clean bill.
David, Rock on!!!
Light and blessings.
55 yrs, Female, smoked for 4 yrs 35 yrs. ago, SCC right underside tongue and floor of mouth, laser surgery took 1/3 tongue Aug 2010, 3 weeks later in Sept right neck dissection 40 nodes removed with 1microscopic spot in one node. No chemo or radiation.
| | | | | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 177 | David, Great job getting through this. Way to stay positive!! Keep us posted. We're here for you.
Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Great to hear that the surgery went well and you are now out of hospital David. I also hope that you can escape the chemo and rads as I did. Now you need a ton of patience with the healing. My problem is and was with the letter "s" and I guess with time they will tee up the speech therapy for you. Now that you have been sprung from the hospital enjoy the upcoming spring and summer while your body(and mind)heals  Cheers Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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