#12392 10-05-2007 02:00 PM | Joined: Jul 2006 Posts: 68 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Jul 2006 Posts: 68 | good for you good luck
lynn
linda anderson
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#12393 10-05-2007 02:00 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Oh Minnie-
I have tears in my eyes reading this news...I am so happy for you.
Will send you an email....don't want to take up too much space here.
Love,
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#12394 10-05-2007 07:49 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Minnie,
As is everyone, I am totally ecstatic and overjoyed at the news. What an awesome God we live for! May God continue to bless you and drop miracles in your path. Tell the girls to keep up the pressure on the insurance company, though, since they deserve a bit of a public lambasting! I can just imagine T-Dog is just a wagging his tail and spinning in circles like the rest of us.
YBIC,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#12395 10-05-2007 07:57 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Minnie,
That is so wonderful!!!!
much love & hugs,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#12396 10-06-2007 12:13 AM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2007 Posts: 168 | That's great news Minnie.
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
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#12397 10-06-2007 03:08 AM | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Minnie - what wonderful news to hear. I am very happy that you had such a good outcome - no trach, no neck dissection - wow!
Hopefully you are at home and resting comfortably. Wishing you a speedy and great recovery after a really bumpy ride....
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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#12398 10-06-2007 05:18 AM | Joined: Jun 2007 Posts: 221 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 221 | Great News Minnie!
May each day find you better than the day before.
Joy
CG to Father, 75 yo with SCC of the mouth; upper maxillectomy and neck diss. performed on 5/23/07. Father also suffered heart attack during surgery and now has CHF. RT complete on 8/28/07. Cancer back 11/27/07. RT and Chemo to start on 12/17. Cancer back 6/17/08. Finally at rest 08/08/08.
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#12399 10-06-2007 11:38 AM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | I haven't wrote much, but I've been following your journey. I am so happy for you. Prayers get answered everyday.... Please take care of yourself and I'll be praying for a rapid recovery for you. It sounds like your doing great already. You are such a strong woman, an inspiration to us all. Linda
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#12400 10-06-2007 01:46 PM | Joined: Feb 2006 Posts: 115 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2006 Posts: 115 | Minnie - such wonderful news for you and your family, and a great spirit lifter for all!!
Michele
Michele, caregiver to husband, Jesse, SCC diagnosed 1/5/06 unknown primary, lf neck mass >6 cm. Chemo (Cisplatin 2x; Carboplatin & Taxol 2x) & XRT radiation 39X ending 4/4/06. Rad neck dissection 8.5 hrs 4/13/06. 30 HBO treatments Fall 2006.
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#12401 10-06-2007 05:03 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | We are all home again under our own roof, arrived this afternoon to one very happy little dog named Lucy! We have decided that we shall begin to celebrate Christmas early this year.......very early.........like tomorrow! I think that may be the vicodin talking. But we did talk an awful lot about Christmas today, so many plans.
I have gone from 106 up to 113 and the tube feedings are doing fine, no issues. My mouth hurts and my head has yet to stop pounding from the anethesia "head aches" I always get, but it will eventually go away. I think a few days will maek a huge difference in how I feel. I go back to Hopkins on Thursday to have this bolster in my mouth removed and to be introduced to my new tongue.
Love to all,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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