| Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Geez, the one thing I wanted during treatment was my husband curled up with me in bed. It helped with my freezing to death and put me sound asleep in no time. We are all so different.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2010 Posts: 531 | Oh I can relate to throwing him out the car! Especially when he couldn't talk at the beginning and I had to take him to Docs, OMG I was either driving to fast or driving too slow go thru the yellow light don't go thru the yellow light. I looked at him the last time and I did say to him, while sitting at the RED light because I DIDN'T go thru the YELLOW, "If you keep this up you WILL be walking the rest of the way home and it's gonna look pretty funny with your writing board and marker trying to get a ride in the middle of the street." He stopped. I was so mad I was gonna cry, but I didn't. And he still will get angry with me he may just be having a bad day, and also I'm sure he does hurt, that cancer is eating at his nerve endings that's what the docs told us and it's constant pain. I can't even imagine. Let him do what he feels good at doing right now to get thru the wait and also the after.
CG to Ron Out of Pain 4/3/13 4/12-lung and under chin growth no treatment 1/13/12 lung biopsy 6/11 recur 6/30 resection #2 Clear margins Clear 12/10 Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out RAD 30 8/10 DX 4/2/10 "Oral Cavity" T3NOMO 12/28/07 Non Hodg Lymph remission 7/08 passed away 4.3.15, RIP Ron, you are greatly missed
| | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Deb silence is something you will have to deal with over the next few weeks.Thats why OCF is such a brilliant place to come.When you are sitting alone at night while he is sleeping,and you don't know what or if you are doing wrong then the boards are the place to be.The wives club will listen and understand ,you will get a patients eye view from the guys and slowly but surely you will work out how to cope.. Good luck xx
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Hey, I get a two-fer. First on cuddling. I'm the most alpha male imaginable yet I always saw cuddling as simultaneous with no cuddler or cuddlee In fact my wonderful caregiver wife and I still tear up whenever Snow Patrol's Chasing Cars song comes on the radio These lyrics so expressed our experience as I lay prostrate on our couch, burned out by radiation and my wife would lay there besides me and we would hug each other. [quote]We'll do it all Everything On our own We don't need Anything Or anyone If I lay here If I just lay here Would you lie with me and just forget the world?[/quote] For those who have never heard this song, here is the U tube link Snow Patrol - Chasing Cars And I definitely hold the championship title on being the WORST patient passenger and criticizing unfairly my caregiver driver. Sorry but all of your husbands would have looked like saints compared to me. "You didn't cut him off" "Speed up". "Hit his ass if he doesn't move over" were just mild comments. Charm
Last edited by Charm2017; 11-01-2010 05:33 PM. Reason: toned it down
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Charm - your wife sure is one lucky lady! Now about the car stuff: It's not only husbands that can be rather "difficult". Every day on the way to Rad Tx, I heard lots of complaints from my son about my driving, like when going thru a narrow curve with the posted limit at 25 (actually I was going 35), he would tell me to speed up! Meanwhile I had the car loaded with lots of towels and water bottles and being careful to ensure a smooth ride to make it easy on his nausea. I have no idea why I didn't just bring a throw-up bucket - you know those cute little dishpans that I could have put a smiley face on. Paul couldn't talk very well but he sure expressed his displeasure in no uncertain terms. At times, though, seeing him looking so pathetic and frustrated at trying his best to be angry almost seemed comical and in a way it was an encouraging step up from seeing him lying in bed and checking on him every few minutes to make sure he was still breathing. That was 4 years ago and he is now a very sweet loving person but whenever we have occasion to go someplace in my car, he's the one that drives. I guess it must be a guy thing cuz I'm a good driver. Really!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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