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Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
Geez, the one thing I wanted during treatment was my husband curled up with me in bed. It helped with my freezing to death and put me sound asleep in no time. We are all so different.

Take care,
Eileen



----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Eileen #123936 11-01-2010 01:30 PM
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
Oh I can relate to throwing him out the car! Especially when he couldn't talk at the beginning and I had to take him to Docs, OMG I was either driving to fast or driving too slow go thru the yellow light don't go thru the yellow light. I looked at him the last time and I did say to him, while sitting at the RED light because I DIDN'T go thru the YELLOW, "If you keep this up you WILL be walking the rest of the way home and it's gonna look pretty funny with your writing board and marker trying to get a ride in the middle of the street." He stopped. I was so mad I was gonna cry, but I didn't. And he still will get angry with me he may just be having a bad day, and also I'm sure he does hurt, that cancer is eating at his nerve endings that's what the docs told us and it's constant pain. I can't even imagine. Let him do what he feels good at doing right now to get thru the wait and also the after.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
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"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Deb silence is something you will have to deal with over the next few weeks.Thats why OCF is such a brilliant place to come.When you are sitting alone at night while he is sleeping,and you don't know what or if you are doing wrong then the boards are the place to be.The wives club will listen and understand ,you will get a patients eye view from the guys and slowly but surely you will work out how to cope..
Good luck xx


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #123953 11-01-2010 05:32 PM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Hey, I get a two-fer.
First on cuddling. I'm the most alpha male imaginable yet I always saw cuddling as simultaneous with no cuddler or cuddlee
In fact my wonderful caregiver wife and I still tear up whenever Snow Patrol's Chasing Cars song comes on the radio
These lyrics so expressed our experience as I lay prostrate on our couch, burned out by radiation and my wife would lay there besides me and we would hug each other.
[quote]We'll do it all
Everything
On our own

We don't need
Anything
Or anyone

If I lay here
If I just lay here
Would you lie with me and just forget the world?[/quote]

For those who have never heard this song, here is the U tube link
Snow Patrol - Chasing Cars

And I definitely hold the championship title on being the WORST patient passenger and criticizing unfairly my caregiver driver. Sorry but all of your husbands would have looked like saints compared to me. "You didn't cut him off" "Speed up". "Hit his ass if he doesn't move over" were just mild comments.
Charm

Last edited by Charm2017; 11-01-2010 05:33 PM. Reason: toned it down

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Charm - your wife sure is one lucky lady!
Now about the car stuff: It's not only husbands that can be rather "difficult". Every day on the way to Rad Tx, I heard lots of complaints from my son about my driving, like when going thru a narrow curve with the posted limit at 25 (actually I was going 35), he would tell me to speed up! Meanwhile I had the car loaded with lots of towels and water bottles and being careful to ensure a smooth ride to make it easy on his nausea. I have no idea why I didn't just bring a throw-up bucket - you know those cute little dishpans that I could have put a smiley face on. Paul couldn't talk very well but he sure expressed his displeasure in no uncertain terms. At times, though, seeing him looking so pathetic and frustrated at trying his best to be angry almost seemed comical and in a way it was an encouraging step up from seeing him lying in bed and checking on him every few minutes to make sure he was still breathing. That was 4 years ago and he is now a very sweet loving person but whenever we have occasion to go someplace in my car, he's the one that drives. I guess it must be a guy thing cuz I'm a good driver. Really!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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