| Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Dec 2006 Posts: 147 | Had quite a scare with Jim - he's been spitting up blood & tissue (about a tablespoon an hr.). His oncologist said there wasn't anything that could be done since he cannot be radiated in that area again and no chemo. Went to radiation Dr. and he ordered a CT scan. Seems like there's a tumor on his trachea and that's what's causing the bleeding. Report reads "tracheal involvement with neoplasm along the left lateral and postero-lateral trachea and may account for the patients slow hemoptysis". Now what does that mean in laymen's terms??? So next steps - go to a pulmonologist to see if he can do a day surgery procedure and hit it with a laser beam....I think they need to name cancer "The Neverending Story"....changed sheets last nite (3) times as he is sweating profusely and drenching the bed. This is becoming more of the norm than ever! My washing machine cringes when I walk up to it....seems to be saying "ENOUGH ALREADY"!!!
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009 Lost the battle November 23, 2010
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I dont have any knowledge of what those technical terms mean. I just wanted to say you both are in my thoughts and prayers. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | My thoughts and prayers are with you both. Didn't the radiation dr. suggest anything that could be done? Maybe go back to him and ask him to explain that mumbo-jumbo to you and what steps can you take now for some relief for Jim. Who mentioned a pulmonologist and laser surgery? I hope you can find a solution soon. julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | My heart goes out to you. I have no idea what any of the medical jargon means, but you are in my thoughts and prayers. I also have the night sweats all the time, and no one seems to know why. In that area I know that it is very annoying. I can't even sleep three hours straight without having to get up and change clothes and place towle on the bed because it is so bad.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Dec 2006 Posts: 147 | The radiation Dr. is sending him to a pulmonologist....I looked up all the terms...it simply means he has a tumor on his tracheo which is likely causing him to spit up the blood....why don't they just say that on the reports. According to the Dr. the sweats are caused by cancer...so we both get a laugh out of it to see who is going to wake up first...him from sweating from the cancer or me from sweating from hot flashes!!! My washing machine really got a work out this weekend!
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009 Lost the battle November 23, 2010
| | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2010 Posts: 135 | You and Jim are in my thoughts and prayers.
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Dec 2006 Posts: 147 | The pulmonologist Dr. appt. didn't go well, but I don't think any of them are going to go good since coming home from the hospital. A tumor has broken thru his trachea & that's where the blood is coming from; there's another tumor in the lung that wasn't there 7 days ago. Dr. asked Jim's permission to "speak frankly with your wife"....it wasn't pretty what he told me, but I was grateful as at least I know what "may" happen or "may not". We took the "Beast" (Challenger) on a drive thru Arkansas and Oklahoma this weekend; just to get away. I am living in a fog and suffering from what I call "anticipatory grief". Jim & I are confused about PEG tubes...I thought there was only one kind that went thru the stomach...are there other types out there? If so, can someone explain it to me. I stopped asking questions at the Dr., it just got too much and I don't want to call them over such silliness (should have asked at the appt.)...things just a little overwhelming...
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009 Lost the battle November 23, 2010
| | | | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2009 Posts: 177 | My thoughts and prayers are with you. Again, I cannot thank the care givers on this forum enough for helping us. You do not have an easy row to hoe. Take Care
Wendy 46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
| | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2005 Posts: 307 | My thoughts and prayers are with you too....Treasure every moment you have with each other.
Hugs to you both,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | I'm so-o-o sorry for what you and your husband are having to go through and am adding my prayers to the others' here. I hope that you and Jim can find some peaceful moments to share and the strength to cope in the days ahead. I don't know about the different types of PEG tubes but someone else will probably have a more experienced idea on this. Please keep us posted whenever you can.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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