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Joined: Sep 2010
Posts: 71
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Sep 2010
Posts: 71
We will get through this together. I guess it will be like a dance! I was very glad I didn't have to do the radial arm flap but it seems like you have come through it very well. You really sound about like me with my partial loss of tongue on the left. I have a mask and mouthpiece - sat under it about an hour last week - NOT by choice! Wed. simulation should be SO simple after that! LOL

Glad we both have family support and we are sure we are going to get through this. We WILL come out the other side stronger and healthier. Yes, we shall dance!

Michele in IL


Female - 53 no smoke/drink
tongue Biopsy 8/2010
Surgery 9/21 for SCC left side tongue stage II. Prtl removal tongue/left side lymph nodes. All Clear
Radiation started 11/2, ended 12/17
Lymph node involved left side along with gum involvement 2/9 Fibular flap failed 2/22.
passed away 1/12/12
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jul 2010
Posts: 531
i love your videos! keep them coming you are truly an inspiration and you will be just fine! just make sure you follow the doctors orders that will help if you do have any issues during/following radiation and chemo. Especially the radiation. Do the mouth rinses and do the soaks for you neck if you need them ALSO, I bought my boyfriend this stuff called Juven. I have a whole box never used AND maybe a couple packets of another box only used. He wouldn't drink it. Look it up if they haven't already given you any AND if you can't get it down there let me know, I will send it to you!!


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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