| Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Oct 2006 Posts: 383 | It sounds like you all are doing the right things. I was about 5 weeks into treatment before I "hit the wall." then it was all through the tube. As far as eating, NEVER EVER GIVE UP!!! And,,,, don't let a doctor make you think that way! I eat steak, chicken, bread, etc., and was told the same thing. It took a long time to get to that point (And I'm stubborn I guess) but it's about learning how, being patient, small bites and lots of water, and desire to succeed. Some meals take a really loooong time but it's all about striving to be "Normal" (Whatever that word means-LOL). Best of Luck. Your Father will get through it with your help! Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2008 Posts: 711 | The chemo hit me 2 days after the 1st tx, but only lasted about a day and 1/2. Radiation didn't really hit until the end of week 2 when I found that everything tasted like week old garbage and I was having a hard time swallowing. Seems that your Dad's nausea is probably like what hit me and hopefully has gone away by now and the rad. effcts will hold off for a while. Good luck.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer. And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer. May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Re the radiation damage and resulting long term side effects to his saliva production...that's why we say that we each can be different because we all differ in the "killing field" or what is in the path of the radiation beam. If his docs can't avoid destroying appx 50% of his salivary gland (which one or ones?) then I guess they pretty much should be able to tell him the resulting side effects. We have many salivary glands so let's hope they are wrong in his recovery ability.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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