| Joined: May 2010 Posts: 135 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2010 Posts: 135 | Congrats Wendy! So happy for you. Enjoy your new "freedom". D
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | That is really good news Wendys. I was wondering how you felt and came thru the surgery. How does it feel to lick your lips? I am serious and not being funny. Without fingers, I would have food, if you can call this stuff food, running down my chin. LOL I'm glad for you.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Great news, Wendy. Congratulations! D2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Sep 2009 Posts: 177 | Thanks everyone!
Well Jim, I can't exactly call it licking my lips....LOL, But I can kinda touch my lips with my tongue. This sounds stupid, but I think last week I realized the they must to cut almost 75% of my toungue off. Not only does it just barely touch my lips, what tongue is there is split right down the middle. Flap to Tongue. Some things are easier some things are harder. I don't know yet how it will fully turn out. I do know that I seem to bite the only part of my tongue that has feeling. So Yah! Thats where it is this week.
Wendy 46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
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