| | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Sorry, Jim - don't mean to stray from your post here but I have just got to compliment Christine here. Christine, I've been on here long enough to know a good deal of what you have been through and yet you are always there to root on and support and comfort everyone else. You are amazing. Hope you're taking good care of yourself as well!!! Jim, she's steering you on the right track - hang in there.
Nancy T
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I always listern to Christine. She always has good advice and keeps me straight when I stray a little. I plan on asking about being a maybe candidtae for that tube she has and am hoping. I also bought the Neutrogena Gel that Charm told me about. Either my head is hard or empty. LOL could be a mixture tho.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi Jim: With moving, unpacking, and all I haven't been on the forum for a while and was surprised to see the problems you're having. I just want you to know that I'm thinking of you and praying for the best. I have faith in you overcoming just about anything you're dealt, so that's something positive. You are "the man."  Hugs from julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Geez Julie, that hug came just as I was needing one. I just wish this pain would stop long enough to enjoy one mouthful so I didn't have to force the food in and down, that is after I smash it a few times and have water or a drink to wash it down. Maybw it time to switch decks and get new cards, LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I haven't heard from the Dr concerning this anneurysm, But I do know he will get Drs from other hospitals for their opinion and what should be done. Whatever it will be I am not ready for but will smile and say, " Do what ya gotta do Dr". Just wake me in time to go home. This home I mean as I don't want to be on the outside looking in.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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