| Joined: Sep 2009 Posts: 148 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2009 Posts: 148 Likes: 1 | Hi Benfry, What a great daughter you are, your Dad is blessed to have you doing so much for him already. I feel for you as it is easy to hear what a frantic state you are in. With good reason, as this diagnosis is never easy to hear. But be comforted honey, this is very do-able! It's not an easy treatment, be it surgery, or radiation & chemo..or all 3. We are living with the benefits of advanced medical treatment options. Your Dad will pull through this just fine. There will most likely be side effects when all is said & done. Us survivors all have some...but we got through it! Before you know it, your Dad too will be "cancer-free" Best of luck!
BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"
*** Admin update --- Dianne has passed away on August 25, 2015 ***
| | | | Joined: Jul 2010 Posts: 49 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jul 2010 Posts: 49 | Hi all, Thank you so much for your support. I have no words to thank you. I feel so much better. In the beginning I was so shocked and worried because I did not know what was going on, the first doctor that saw him in Ecuador said they could not operate him there. We got my dad an appointment in Memorial Sloan-Kettering yesterday. They reviewed his slides and MRI so they found the tumor is localized and has not spread. He is in stage 2. His surgery is scheduled for 8/11/10. He will have a partial glossectomy and neck dissection. I am still worried and will always be alert but now I am calmed and have hope. Thank you.
My Dad: Squamous Cell Carcinoma,Stage 2, Right side of Tongue Dx 7/19/10 Partial glossectomy and neck dissection 8/18/10 Reocurrence: 04/2011 Base/back of Tongue right side Surgery: Partial glossectomy, flap 06/15/2011 Rad and Chemo finished on Sept/ Oct 2011 Recovery and assimilation. Enjoying life
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Congrats on the good doctors visit. Im sure you are so relieved!!!! To me it sounds like its great news, much better than what they told him in Ecuador. Im happy that its treatable. This is exactly why everyone here said to take him to a cancer center. Has the doc talked about doing chemo and radiation? Or will your dad be treated with just surgery? Hope your dad eats all he can right up til his surgery. Thanks for updating everyone. Hope you and your dad enjoy this beautiful day ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2010 Posts: 49 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jul 2010 Posts: 49 | Hi Christine! Thank you! It was great news. I feel better now! I am still very nervous. I will be until the day of the surgery. The doctor said my dad will be evaluated about a week after the surgery to see if he still needs radiation. He did mention he believes surgery will be enough. He is not suppossed to have any aspirin before the surgery. Now I am trying find out more info about his tests before surgery but he has a hold until we get his insurance.. I spent the weekend collecting information the insurance co might need. This week feels endless I have not been able to sleep, I guess it is normal, but we are taking it day by day. Can he really eat everything or should he avoid some foods? They gave him a list of things to avoid. Thank you for everything <3 I hope you enjoy your day and we'll keep in touch  Benfry
My Dad: Squamous Cell Carcinoma,Stage 2, Right side of Tongue Dx 7/19/10 Partial glossectomy and neck dissection 8/18/10 Reocurrence: 04/2011 Base/back of Tongue right side Surgery: Partial glossectomy, flap 06/15/2011 Rad and Chemo finished on Sept/ Oct 2011 Recovery and assimilation. Enjoying life
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thanks for the update. Hope your dad gets to eat all his favorite foods. It will be a little while before eating is the same so its best to eat lots now. Of course, if the doc said to avoid something, listen to the doc. Best of luck  ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Apr 2010 Posts: 201 | Hey Benfry!! Thinking o u and your family today as you prepare for surgery tomorrow. I will keep u in my prayers. Please keep us posted!!
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads 1/10/2011 Clear PET!!!
| | | | Joined: Aug 2010 Posts: 4 Member | Member Joined: Aug 2010 Posts: 4 | Thoughts and prayers go to you and your dad. Very similar to what I just went through. | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Feb 2010 Posts: 235 | Hope the surgery went great. We are using Sloan and have a very high regard for the Drs there. Your dad is in good hands.
CG to Spouse BOT, Chemo and radiation started on March 29,2010 Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Two weeks really isn't that long but seems to be when you are involved. Good luck to your dad and welcome aboard. The postyers here have been thru most of the treatments and have great advice if you ask them.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jul 2010 Posts: 49 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jul 2010 Posts: 49 | Thank you everyone I really feel better every time I come to read your postings. My dad's surgery had to be rescheduled due to paperwork to 8/18/10. The surgery date was confirmed today I am praying it won't change. Last week was torture but we have a lot of hope now and I hope he gets to finish this part of treatment soon. I feel what you go through and I wish you all the best. I will continue to keep you updated. I'm counting the days...  :^) :?
My Dad: Squamous Cell Carcinoma,Stage 2, Right side of Tongue Dx 7/19/10 Partial glossectomy and neck dissection 8/18/10 Reocurrence: 04/2011 Base/back of Tongue right side Surgery: Partial glossectomy, flap 06/15/2011 Rad and Chemo finished on Sept/ Oct 2011 Recovery and assimilation. Enjoying life
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