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| | Joined: May 2010 Posts: 48 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2010 Posts: 48 | Thanks for all of the positive encouragement. I am going on week four starting this Monday. I am actually able to sleep in my bed half way through the night! I usually fall asleep in recliner then go upstairs! I am swallowing more and have less saliva. Doing a ensure shake by mouth with each meal and can swallow pills; but still use PEG for 3 cans of jevity 3 times a day. Tried scrambled eggs on Friday but may have over did it; threw up a little bit after. I took a break today but i think I will try yogurt and apples sauce today!! So far doctors say things are healing good; did get a case off thrush  but treating with anti-fungal. Overall I can open mouth fairly well; but have been reading a lot of blogs about Trismus so I am doing exercises just to be safe!! Take care everyone! God Bless!! Charles
Last edited by Irishgypsie; 07-24-2010 10:34 PM.
Charles
HPV +16 Right Tonsil SCC with 1 Right lymph node. Tonsillectomy and neck resection.
Got 33 radiation doses via tomo machine (58 gry to back of throat, 65 gry to right neck, and 56 gry to left neck) with 2 cisplatin and one carboplatin due to possible hearing loss.
| | | | | Joined: Jun 2010 Posts: 18 Member | | Member
Joined: Jun 2010 Posts: 18 | Saying prayers that your surgery is successful and that she has an "easy" recovery. God Bless You!
Susan
Primary caregiver to 78 yr.old father w/Oral Cancer
SCC
Tumor found May 2010
Left side back of tongue & up into ear canal opening
Biopsy June 3rd 2010
Diagnosed May 2010
No Surgical Removal (As Yet)
Tx 7 weeks (35 Days) of Radiation & Erbitux infusion 7 weeks to run concurrent w/the radiation
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Charles, try poached eggs and don't over cook them. I tried scrambled and my trash can got that meal. Egg beaters made real soft and wet work too with lots of butter.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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