| | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Emily, that's wonderful news!
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Emily, I am so happy to hear of the help you are getting from the Angel Network!!!!! If you call the hospital and explain you are coming from out of state, they may have a place for you to stay. Some hospitals have houses nearby for patients families. All you can do is ask and see what they say. Try asking for patient services or in their cancer section if they have a support couselor. That would help with the hotel fees. You are a great girl any mother would be so proud to have as her daughter  Please make sure you get some rest yourself.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | The hospital has a deal with nearby hotels. Years ago, my mother was at the Texas Heart Institute (adjacent to MDA), I spent a month at the Holiday Inn. I got a break on the room, but boy, was I glad to get home!
Good luck!
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2010 Posts: 111 | Thanks ladies They do have a house/hotel at the hospital called the Rotary House but it STARTS at $110 a night...and they dont offer a discount!? But the hotels across the street do, I just had to mention 'a medical discount'. They all have free shuttles too. Everything has fallen into place we're just playing the waiting game. Thank you all again for the positive support. This place has really become my only outlet
my mom, age 59.
12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Thinking of you Emily and praying for your Mom. Hang in there. You are so good to her! XOXOXOXXO Kate
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Oh, Yes, the shuttles are great! "Across the street" is more than crossing a crosswalk. Texas is big, and so are the streets.
Good luck!
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Emily and Freida...
Wishing you the best of luck with your upcoming trip next week. Im hoping you find the answers and the help that you need. Make sure you write down a list of all your questions and take it with you to write down the doctors answers. Even the best memories cant absorb everything at those appointments.
I will keep you both in my prayers. Have a safe trip.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2010 Posts: 111 | We are leaving tomorrow (monday) at 6:pm, then our first appointment is at 7am on tuesday.
Im very sad to leave my husband and home for a whole week but at the same time, I realize this could turn into even longer than just a week - assuming they can help and decide to keep her. I have no idea when I'll be back home. Texas is so far away. Im a little scared of the unkwown and especially because I will be all by myself to deal with everything. My husbands been a great support system - Im sad to be going without him.
Anyway I will come back to here to update you all after our first day there. Ill have my laptop with me of course. We also rented a car so we wont have to worry about the free shuttles!
my mom, age 59.
12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven
| | | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2010 Posts: 135 | Good Luck Emily, you and your mom are in my thoughts and prayers.
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Wishing you all luck and sending you strength to get through this difficult time. K
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
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