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Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
I agree with Eric. Dont rush telling them until you have the results. Even then it might be good to wait til a treatment plan was in place so you had more info.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jun 2010
Posts: 87
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Jun 2010
Posts: 87
I really appreciate everyone's input. I nonchalantly told our younger three children (10 yr. old twins and 14 yr old) that I was going down to the hospital for some tests on my thyroid gland and left it at that. I am glad I had at least told them that since I came home in such severe pain from the unsuccessful attempts to do a FNA of the mouth lesion and then felt horrible the rest of the afternoon. My two daughters leave Sunday for a week away at camp so they won't be here when we get the results.

Both of our boys (one of the twins and the 17 yr old) have problems with anxiety. This morning the ten year old had an appt. with his psychiatrist (he sees her every two or three months for medication mgt.). I always have to fill out an update form right before the appt., so I wrote a brief note to her about what is going on. The psychiatrist had me come back alone first and informed me that I had the perfect psychologist for what we are going through. I had no idea, but the psychologist we see (and have been seeing regulary since last fall) specializes in children who have cancer or who have parents or other relatives with with cancer. While I certainly hope everything is benign, it is a comfort to know this is her area of expertise. God works in mysterious ways!


Susan
Age 51, married with four kids age 11-18, 9/1/2010, Bx: high grade mucoepidermoid CA left sublingual gland.
10/8/2010, wide excision left floor of mouth, modified radical node dissection left neck.
T1N0M0. IMRT started 11/22.
Never smoked, light social drinker
Also happen to be ICU RN
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