#11763 09-06-2007 06:45 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Good news there then!
Continuing to think of you!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#11764 09-06-2007 10:14 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | That's great news Minnie. I knew you could do this. The one thing we survivors have going for us is we tend to catch it early. Did you ever get the results from your PET scan? Your gonna beat it this time too. You go girl.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#11765 09-06-2007 01:48 PM | Joined: Nov 2006 Posts: 167 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 167 Likes: 1 | Great news Minnie!! May all your news be this good from now on. 
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | |
#11766 09-06-2007 02:55 PM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Great news Minnie!
My mom has only 1/4 of her tongue left and she talks & eats and drinks quite well and she had the same surgery as you on her jaw. The tongue surgery was by far easier than the jaw surgery.
Keepin you in our toughts and prayers.
Hugs,
Dani
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#11767 09-06-2007 04:25 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | ..and last, but not least, Minnie...here's a BIG HUG from North Carolina....I'm elated!
Still praying for you daily!
Lois & Buzz
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#11768 09-07-2007 11:46 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Minnie,
You have turned my tears into tears of joy! May He continue to bless you in many ways.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#11769 09-07-2007 02:56 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hi Minnie, That's great. Jack is in a clinical trial in Hopkins and we feel the same way about it. It's an amazing facility. You just get a sense that they know what they're doing and that you're in good hands when you go there. The cafeteria isn't too bad either and Jack likes the smoothies in the coffee cafe.
I'm so glad to hear the doctor was confident and hope you will continue to maintain your wonderful sense of humor and strength. We're all thinking about you and wishing you well. I think Jack goes back to Hopkins in early Nov, who knows maybe we'll get to meet you there.
Best Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#11770 09-07-2007 04:10 PM | Joined: Apr 2002 Posts: 52 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2002 Posts: 52 | Great news Minniea that your getting treatment at JH. Sounds all good, with your determinaion, great family support and all of us routing for you, your bound to come out on top of this, one more time.
Best wishes to all
Marlene
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#11771 09-07-2007 08:15 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I'm so lucky to have all of you. I have tons of support here in Va. Beach between the school and my church..........but it's this board that I come to each morning and each night because I know it's people that truly understand my feelings. Thank you for that.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#11772 09-08-2007 01:08 AM | Joined: Jan 2006 Posts: 107 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2006 Posts: 107 | My Dearest Minnie,
Once again your courage and optimism are just awesome. There are so many wonderful people here on this site and it is just immpossible to connect with all of them ,I am so lucky that you are one of us whom I feel close to. I am convinced that everything will end up in a good place for you and that you will be able to handle any challange put forth. Minnie I love your attitude, I love approach and I love your courageThis is why you are on my pedastal.
Lenny | | |
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