Minnie: Thinking of you, and praying that God will give you the strength and patience you'll need until you get your report. Just know that all of us love you and care for you and your family........

Minnie
Gary say we are not all insane at the same time
:rolleyes:
Well you and me are going to be good company for each other in the asylum
I wasn't going to post this but having read your post and not wishing to steal your thread, I suppose you are the best one to share this with.
My 'area of concern' is an ulcer ( not immediately visible to me) on the scar tissue at the back of my tongue and the margin of the graft. It has been painful for a few weeks, so took my self to my dentist yesterday. He performed his tricks with the mirrors and found the ulcer.. Unfortunately he also found an enlarged lymph node in my neck.
This weekend is a holiday weekend, so the earliest I can phone the hospital is Tuesday. Oh and the next head and neck clinic will be a week on Monday the 3rd of Sept.
So for the next 7 days can I climb the same wall as you.
Will light candles and say a quiet prayer for you. Sorry to have hogged your thread. ( will mail you anyway)
Sunshine.. love and hugs
Helen

Minnie,

I hope it will be good news on Tuesday, my love and best wishes.

Oh Helen, I'm very sorry to hear that. Good luck on Tuesday as well, love and hugs.

Tizz

Hang in there Minnie! You are in my prayers.

-Steve J

Wow, Minnie and Helen...so sorry to read about the stress of your current situations.

Praying for really good news for each of you on Tuesday!

Minnie and Helen, you will both be in my thoughts an prayers.

Jerry

Hi Minnie, So sorry to read what you've been going through. The best thing about OCF is that we know we're not alone as others have felt that same fear, lost our composure big time, par for the course so don't feel bad because your normal.

I've had the same problem, among others, this past year so hope I can help you a bit here.
When I had cancer 5 yrs ago I was on a liquid diet 4 years but finally found one spot on dentures that I could chew pretzels and swallow as long as I uesed yogurt for a dip. Well, let me tell you I was a very happy camper as long as I could have that crunchy food to look forward to.
So I chewed a lot of pretzels even though it was hurting more every night as I took my dentures out for the night. Finally I couldn't take the pain anymore went to dentist for adjustment. He was very upset when he saw this large white patch on roof of mouth,and insisted I get biopsy.
Before I could get it looked at I had that bleeding episode in May.

I'm pretty much over that and have apt. 9/4 for biopsy though oral surgeon doesn't think it's anything and I'm pretty sure he's right as it has shrunk a lot since I've been off pretzels 3 months now.

What I want to tell you Minnie is that we don't have to get skinny because we can't eat regular food. I'm back on liquid food, mostly Nutren 1.5
complete high calorie liquid nutrition.
Yes it tastes terrible, add chocolate, strawberry boost and pour over ice.
I remember after my radiation 5 years ago when food was out of the question the only thing that kept me alive was chocolate Ensure poured over ice was the secret.
Like you I looked like death warmed over till I realized I could die, Anorexic, if I didn't get serious putting nutrition in my body.
Trust me it's very hard to get that weight back on.

So Minnie get yourself some Boost, ice cream, anything to get some nutrition. We can't fight without some real nutrition in our body. There is nothing we can chew with this much food value.

I hope your test comes back nagative and from now on you go easy on the chewing. I know I gave up pretzels PDQ when I saw the look on my dentist face.

Good luck and best wishes to you all as we hold out breath for Minnie this week.

[quote]I do not wear my upper denture, so when I eat, I use a tongue thrusting motion that causes the contact between the underneath of my tongue and my bottom teeth. This has created quite an open area under my tongue that just won't heal. It trys to and at times seems like it is, but then I get really hungry again, eat alot, and we're back at square one. [/quote]What does your dentist/oral surgeon have to say about this?

McRiley, my dentist, who is a specialty cancer dentist, told me two months ago that he was not concerned that this was cancer. He said he could see where it was rubbing on my implants. He shaved my implants a bit yet the area didn't heal. So, now the biopsy. I will say that day 5 after the biopsy it looks better. The edges have healed, the color is the same color as the rest of my tongue and it doesn't hurt. We shall see on Tuesday. I just can't shake a bad feeling about this, which isn't like me.

Marliz,
You are so right about the nutrition. My husband has become my warden and I think I gained at least two pounds over the weekend, lol. He's such a good man, for his sake more than mine I pray that my biopsy is negative. He just landed the biggest contract of his career...........it will put us in a place financially that we've never been before and never dreamed of being. For me to get sick again right now would certainly mess that up for us.

Thanks for the advice and the kind thoughts.
Minnie