#11703 08-26-2007 06:16 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Helen.............if I had to pick a cellmate at the insane asylum..............it would certainly be you hon! I'm praying for both of us.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#11704 08-27-2007 02:34 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Thinking of you ladies....
Tuesday seems to be a big day for a lot of people this week!
God Bless everyone.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#11705 08-27-2007 02:41 AM | Joined: Jun 2004 Posts: 155 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 155 | Minnie and Helen
Hugs and ((((Positive Thoughts)))
Bob had a questionable chest xray two weeks ago and we just got good word that his CT was all clear..as I breathe my own sigh of relief I send all that good energy to BOTH OF YOU...you are both very very special ladies
Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04
Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.
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#11706 08-27-2007 12:03 PM | Joined: May 2003 Posts: 102 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2003 Posts: 102 | Dear Minnie,
You have been a tower of strength, a shoulder to lean on and a sympathetic ear for so long to everyone here including me when my Aunt was fighting and losing her battle. I feel so very guilty about not reading the board over the last four or five days because I've been absolutely miserable with the discomfort and weirdness of a recent root canal tooth. Now I really feel guilty!! I'm a wimp compared to you guys. I am SO very sorry for what you are going through. Please don't keep your feelings and fears locked inside you, lean on your family.
They love you. That's what they're there for. It's amazing that sometimes all we need to get us over a bout of terrible anxiety is for someone we love to just hug us and not let go.
My hopes and my prayers are with you. I will pray very hard that tomorrow is a good day for you.
I know you don't feel like eating right now but please do eat to keep up your strength, so that your stomach has something to work on, so that your meds aren't floating around in an empty stomach and so we don't have to call you Skinny Minnie.
Did I make you laugh??
My prayers tonight are for you, Helen and Dr. Mike. God be with you all and give you strength.
Hugs,
Lisa
Niece to Aunt Ro- Dx: 4/03. SCC Stg 4 BOT with mets to fl of mth & crvcl lymph node. AdenoC 1 sal gland. Two add. reconstrc. surgeries for adhesions. Recurrence 7/06- Sub-Mand AdenoC. Mets to both lungs. Lost her battle 5/4/07.
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#11707 08-27-2007 04:01 PM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Minnie and Helen-
My prayers are with you both as they have been throughout the years. The waiting is always the hardest, so know that there are others holding you up right now! Love, Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#11708 08-27-2007 06:36 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Goood luck and positive thoughts winging their way across the pond.
i will be thinking of you both today
much love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#11709 08-28-2007 12:32 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Minnie and Helen, Thinking of you both today and sending out my deepest wishes and positive thoughts thst you both get good news.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#11710 08-28-2007 06:18 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hello Everyone,
The other shoe dropped for me today and I was re-diagnosed with cancer in my tongue. He is staging it at a Stage 2 but if one lymphnode that showed up on my CAT scan is positive then he will move it to a Stage 3. He was positive with me today while at the same time being honest. I go Friday for a PET scan and if anything shows up in my lungs we will not go forward with treatment for the tongue. If all is clean, then I'm having what he called an exploratory surgery on Wednesday so that he can look down in my throat and under my implants without causing me discomfort, he'll sedate me. After these procedures, I'm flying to Boston to Dana Farber for a consult, we started setting that up today. I do believe this time we need a second opinion.
Treatment planned thus far is a partial glossectomy and a neck disection. Feeding tube will be put in and he went on and on about how I probably won't be able to swallow or eat again and I immediately thought of people on this board! I know many of you with partial glossectomies that eat and swallow just fine.
I will write more later, it's been a long, drawn out day. My poor, poor husband. My heart is breaking for him. My girls are troopers, pulled together and had me lauging most of the evening.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#11711 08-28-2007 07:55 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear, dear Minnie
I am thinking of you here and know you will approach this recurrence with the wisdom that you so often share with others.
I, like many here, have benefited from your support and send you and your family love and positive thoughts.
Your friend Helen
RHTonsil SCC Stage IV tx completed May 03
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#11712 08-28-2007 08:20 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Oh minnie ,what can i say.The news none of us wanted to hear.My deepest ,deepest love and support are sent and i will follow you progress avidly.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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