| | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | That's the spirit!!! Please know that you and your children will definitely be in my prayers for strength and comfort as you go through this ordeal. Hope all goes well with the surgery and you come out with wonderful news. Please stay on the forum and let us know how you're doing. Take care. - Nancy
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Lori, I hated to read this news. cancer is a horrible beast. I know that you will fight put on your boxing gloves. We are all in your corner. I will keep you in my prayers. I can not say it any better than the others have already said it. It just makes me speechless.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Lori,
I am so sorry that you have to fight cancer once again. You and your children are in my thoughts and prayers. Please come to this forum often so we can support you in your fight.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Lori- I'm sending out many prayers and positive thoughts your way. You have truly been through more than what you deserve. If it helps, A friend of mine was diagnosed with colon cancer a year ago and she did great! She had surgery and chemo and came out with flying colors.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Lori,
I just lifted you and your kids up in prayer. I'm so sorry that you have to go through this and I will continue to pray. Please keep us posted!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Oct 2007 Posts: 83 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 |
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Lori,
It just sucks that you have to go through this again but here's hoping all will be fine. You can do this and we are here to help you through this even if it isn't oral cancer. Keep us posted as to what is happening.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Lori,
So sorry to hear that again you have to deal with cancer.
My very best wishes for the surgery on the 7th. Please let us know how it went as soon as you can.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Aug 2008 Posts: 96 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2008 Posts: 96 | Dear OCF friends,
Just an update on my cancer. May 7 I had a right hemicolectomy, in which the cancer was discovered to be quite a bit larger than they thought. The surgeon said that he got all the cancer, and a few days later we got the pathology from the removed lymph nodes. They were all negative, thank God! So the surgeon said that I was a Stage I. A few days later I had a PET scan. I saw Ron's Oncologist on May 17, and he told me that the PET scan showed 5 lung nodules along with some suspicious mediastinal lymph nodes. There were 3 nodules in the right lung and 2 in the left.
At that point, we didn't know if the lung nodules were metastases from the colon, or a separate lung cancer. The Oncologist sent me to a Cardio-thoracic surgeon at St. Luke's in Milwaukee. I had a Mediastinoscopy and Right Lung Wedge Resection on May 28, 3 weeks after my colon surgery. Two days later I got rid of the chest tube and was released. On June 1, I got the word that the lung nodules were negative for cancer. They were scar tissue from my many pneumonias in the past. Again, thank God! The next day I had my Port placed.
Today I went back to the Oncologist for the final chemo verdict. He said that I was on the fence between Stage II and III. He is going to try to get me into a trial. Either a trial using FOLFOX or a trial using FOLFOX plus Avastin. If neither trial will accept me, I will just start FOLFOX next week with him. The total treatments will be 12 (6 months worth), with chemo being every other week. I will go in on day 1 for an infusion of Oxalyplatin, then get hooked up to a pump with the other 2 chemos, 5-FU and leukovorin. I come back on day 4 to get unhooked, and on day 5 come in for blood work and a shot of Neulasta to keep my counts up.
So that is the plan as I know it right now. I am feeling fairly good, although I am very tired already and I haven't even started chemo yet! I am also still taking pain meds for pain where he took out part of the right lung. The kids and I survived June 6, the first anniversary of Ron's death fairly well. We had each taken some ashes and we all went out on the farm to a special place to each of us and sprinkled them. We had a nice lunch, and I invited his mother over to join us. The actual sprinkling was pretty emotional but the rest of the day went okay. Better than I thought it would be, anyway. I thank all of you for your kindness and your prayers (and your kneemails! lol). I appreciate and think of you often! I wish all of us good health!
Lori
Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
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