| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | OP  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | With OC Month fast approaching I would like to suggest something for the City to do. Maybe start off small like a oral screening at City Hall. Any guidance would be helpful. WE don't have any hospitals in our City but many in the surrounding cities.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,916 Likes: 63 | In all of OCF's screening events, even the ones partnered with WalMart, we invite local politicos from the Major of LA to council people to come to the screenings. There is a simple reason. Th Mayor never does anything with out media on his tail.... usually invited but often not. It makes the evening news.
We have done a lot of these, and learned a lot from our early mistakes. The most important thing to do when you consider doing a screening, is to do it in a place where lots of people already are coming. (Like at the front door of a Wal-Mart where 30,000 people a day walk through it) This gets rid if the issue of getting people to come to your event, you just need "people wranglers" to talk to the people about the need for the screening, and that it's FREE and painless and only takes a couple of minutes.
If you would like some help working this out, please give me a call and hook up with Susan Lauria, who is coordinating all our events.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Having run a few screenings myself, we can discuss this on Sat. if we have some time. Not sure how busy you are at the restaurant and how much time you'll have to talk.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | At last night's Council meeting I brought my idea up under New Business and that was to have our City recognize and sponsor some OC event in April. I mentioned the idea of a free screening and I got a 5-0 consensus approval vote to go forward. Next step is for our City Mgr to get with staff and get back to me so now what do I do in preparation of that meeting? Where do I find the "screeners" ? for example.
Brian good idea re the location as I was thinking the parking lot of City Hall but now I will shift it to say our Walgreen's or our McDonald's. Walgreen's may be better due to it's avg aged patron. Our City doesn't have a Walmart or even a large food chain. All of those are located just outside our City limits.
Any other thoughts?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | How about your library, fire hall, or church? All sponsor blood drives around here.
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Start with your dentist, who I would have to assume knowing you, does OC screenings. He should then be able to find at least one other dentist that will volunteer his/her time.
Also, contact Susan Lauria. She has 3-4 dentists at her event every year.
All in all, I think that you will probably find that having it in April may be a little too soon to put this together. However, it can be done anytime and accomplish the goal.
No Walmart in Gulfport...oh my.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,916 Likes: 63 | You need to call me on this and Susan too. There is too much to do to make this happen in april. There is liability insurance to get, and more. Besides it's not like this isn't still going to be an issue in June..... If you are hell bent on this being in April, it could still be done, but it would be hard to capitalize on the other opportunities that the event makes - News stories in the paper before and after, ditto TV, partnerships with other people that make it an event, like a live broadcast from a local radio station from the event.... lots of possibilities that make it more than a screening but an real awareness raising opportunity.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I'll call you guys today and remember I will have the City's umbrella to do this under (at least I assume I will at this point). Re TV, newspaper coverage, etc my wife and I know plenty of those people so I'm sure I can pull that piece off. I'm calling my dentist today and will stop by our Walgreens and see if they are willing to be a part.
Never say never is my motto. Hell I could get this thing done for this weekend if I had to!! lol
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | David,
Do I remember you saying there is a farmers market or food fair or some kind of a bazaar every Saturday that draws a lot of people? If so, why not do it there?
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | OP Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | That's in neighboring St Petersburg. I really want to start something in Gulfport and perhaps build upon it. Besides the Market in St Pete draws 10,000 or so with over 200 vendor booths plus live entertainment. This would be tough to compete with everything else IMO.
So far not going the way I thought this am. My dentist hasn't returned my call yet and the Manager of Walgreens is on vacation until Monday. ugh
So how many screeners do I need? Have NO idea how many will take advantage of FREE but I really suspect a lot.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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