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#114158 03-16-2010 05:57 AM
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With OC Month fast approaching I would like to suggest something for the City to do. Maybe start off small like a oral screening at City Hall. Any guidance would be helpful. WE don't have any hospitals in our City but many in the surrounding cities.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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In all of OCF's screening events, even the ones partnered with WalMart, we invite local politicos from the Major of LA to council people to come to the screenings. There is a simple reason. Th Mayor never does anything with out media on his tail.... usually invited but often not. It makes the evening news.

We have done a lot of these, and learned a lot from our early mistakes. The most important thing to do when you consider doing a screening, is to do it in a place where lots of people already are coming. (Like at the front door of a Wal-Mart where 30,000 people a day walk through it) This gets rid if the issue of getting people to come to your event, you just need "people wranglers" to talk to the people about the need for the screening, and that it's FREE and painless and only takes a couple of minutes.

If you would like some help working this out, please give me a call and hook up with Susan Lauria, who is coordinating all our events.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Having run a few screenings myself, we can discuss this on Sat. if we have some time. Not sure how busy you are at the restaurant and how much time you'll have to talk.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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At last night's Council meeting I brought my idea up under New Business and that was to have our City recognize and sponsor some OC event in April. I mentioned the idea of a free screening and I got a 5-0 consensus approval vote to go forward. Next step is for our City Mgr to get with staff and get back to me so now what do I do in preparation of that meeting? Where do I find the "screeners" ? for example.

Brian good idea re the location as I was thinking the parking lot of City Hall but now I will shift it to say our Walgreen's or our McDonald's. Walgreen's may be better due to it's avg aged patron. Our City doesn't have a Walmart or even a large food chain. All of those are located just outside our City limits.

Any other thoughts?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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How about your library, fire hall, or church? All sponsor blood drives around here.


Anita (71)
CG to husband, Clark, 82,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22, 6/25
PEG 7/21
Botox injections
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Start with your dentist, who I would have to assume knowing you, does OC screenings. He should then be able to find at least one other dentist that will volunteer his/her time.

Also, contact Susan Lauria. She has 3-4 dentists at her event every year.

All in all, I think that you will probably find that having it in April may be a little too soon to put this together. However, it can be done anytime and accomplish the goal.

No Walmart in Gulfport...oh my.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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You need to call me on this and Susan too. There is too much to do to make this happen in april. There is liability insurance to get, and more. Besides it's not like this isn't still going to be an issue in June..... If you are hell bent on this being in April, it could still be done, but it would be hard to capitalize on the other opportunities that the event makes - News stories in the paper before and after, ditto TV, partnerships with other people that make it an event, like a live broadcast from a local radio station from the event.... lots of possibilities that make it more than a screening but an real awareness raising opportunity.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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I'll call you guys today and remember I will have the City's umbrella to do this under (at least I assume I will at this point). Re TV, newspaper coverage, etc my wife and I know plenty of those people so I'm sure I can pull that piece off. I'm calling my dentist today and will stop by our Walgreens and see if they are willing to be a part.

Never say never is my motto. Hell I could get this thing done for this weekend if I had to!! lol


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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David,
Do I remember you saying there is a farmers market or food fair or some kind of a bazaar every Saturday that draws a lot of people? If so, why not do it there?

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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That's in neighboring St Petersburg. I really want to start something in Gulfport and perhaps build upon it. Besides the Market in St Pete draws 10,000 or so with over 200 vendor booths plus live entertainment. This would be tough to compete with everything else IMO.

So far not going the way I thought this am. My dentist hasn't returned my call yet and the Manager of Walgreens is on vacation until Monday. ugh

So how many screeners do I need? Have NO idea how many will take advantage of FREE but I really suspect a lot.



David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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We're exploring a Starbucks' parking lot. The main corporate office in Seattle won't commit, but basically say that it is up to the individual stores, and the strip mall or whatever they are in. We did one at a Starbucks in San Diego with the American College of Prosthodontists who were having their annual meeting in town at the time. There is a system to get in your head here, supplies, seating, rental tables and drapes, table front banners to tell people what's what, people wrangling, handouts, releases for those screened to sign, and referral forms to somewhere for those with a suspicious finding. Again, I urge you to have a conversation with me bout this as we have done a bunch, and have some of this wired.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Better to have too many than not enough. I've done them by myself (not by choice)and people tend to not hang around. I would think that a minimum of three would be a good start. More if you can.

Very few people have any idea that April is special for OC, so I agree 100% with Brian that waiting and doing it not being under pressure, will have a much greater benefit.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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OK OK OK

I get the picture. I'll call. Obviously I am not underestimating this but never doing one before I'm sure there are many details that I may not be aware of. April is a horrible month for me but I'm trying to tie the City into this thing and it just seemed natural for me to use OC Month as a catalyst.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Not to point out the obvious, but make certain your dentists know how to do a proper oral cancer screening. Many do not so you can't just 'let your fingers do the walking' though the yellow pages looking for screeners.

Brian, Are dental hygenists allowed to be screeners? Some of them do better scrrenings than some dentists.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Eileen,

I'll answer that. Hygienists can do screenings. I know of many that have picked up OC, but they would obviously have to refer a patient to a doc for a biopsy. I actually am more confident having my screening done by my hygienists.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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My oral screening is really shaping up.

So far I have locked up using our cities' Walgreens parking lot on a Sat in May yet to be determined. They will also advertise it on their electronic signs. I have also tied in the City of Gulfport who will supply the man power, the tents, banners, etc. I have secured the services of 3 local dentists. I have a committment from Moffitt that they will man a table and display their services and answer questions. My RO, Dr Trotti, also told me today that he may partisipate and bring that dreaded scope. I have talked to Laura and have started to recieve OCF display material. Still waiting to hear back from the dental supplier. All I need now is for my dentists to pick a sat in May.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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David,

After reading your post, the song "Taking Care of Business", by Bachman Turner Overdrive seemed appropriate.

Taking care of business, every day
Taking care of business, every way
I've been taking care of business, it's all mine
Taking care of business and working overtime.

(I would have put that in the quote box but I don't know how).

Congress could learn from you on how to get things accomplished quickly and efficiently.


Anita (71)
CG to husband, Clark, 82,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22, 6/25
PEG 7/21
Botox injections
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That is truly amazing. Even I couldn't have done that so fast.

Don't forget the release form and patient questionaire.

Megan should be able to provide those. If not let me know.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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Thanks all and thanks Jerry for the reminder. Laura was supposed to have already e mailed me those so I'll e her again this am.

Do these things get names? I mean what should it be called?

1st Annual Gulfport Oral Cancer Screening

1st Annual OCF (spelled out or not) Oral Cancer Screening

Suggestions?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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If you got to the EVENTS section of the OCF website and look up all the past and present walks and screenings, you may find something to modify to fit your screening. Id nothing strikes you, I would go for:

"1st Annual Gulfport Oral Cancer Screening"

I assume when you write Laura, you actually mean Susan Luria.

Megan, at the OCF office, could probably get you a banner to use to hang on the tent where the screenings are being done.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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Yes I meant Susan. There is a Laura that I am also working with. Susan is sending some banners and the City is going to pay to get some made up as well but I will wait until I see what Susan sends me.

Got the dental supplies donated today so all I need is my dentists to pick a Saturday. The City has agreed to advertise once a week for the 4 weeks leading up to the event and they will hang one of the banners they have made across our main street like we do for other city sponsored events.

I believe I will propose that it be called 1st Annual Gulfport Oral Cancer Screening followed by Sponsored by the City of Gulfport and the Oral Cancer Foundation. I may even lop off the 1st Annual part.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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[quote=davidcpa]I may even lop off the 1st Annual part.[/quote]
As an editor by profession, I would be remiss if I didn't point out that, technically speaking, it's not the 1st Annual anything. Annual = yearly, and there wasn't such an event a year ago. wink

The Associated Press stylebook (which most newspapers either use or base their own stylebooks on) notes:
[quote]annual An event cannot be described as annual until it has been held in at least two successive years. Do not use the term first annual. Instead, note that sponsors plan to hold an event annually.[/quote]
Just FYI -- some editors have been known to discard press releases that talk about the "first annual" whatever.


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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Leslie, that's great. Everyone assumes that by using 1st Annual, they're indcating that there will be another one next year. I have learned so much from you over the years.

I'm sure Coucilman David, will appreciate you're input.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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And I thought I knew everything!

Ok so off goes the 1st Annual.

Never heard that before.

So let me get this straight... One can never use 1st Annual because if you can't say Annual until the 3rd year you have well past the 1st anything?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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David --

Remember, this is just newspaper style we're talking about, not Holy Writ. If you want to call it the 1st Annual, go for it.

In common usage (albeit incorrect, according to strict constructionists of the language), calling an event the 1st Annual whatever is understood to mean "the first of what is expected to be an annual event." However ... what if you don't have one next year for some reason, or have another one six months from now? Then calling it the 1st Annual whatever looks a bit silly.

But be advised that whenever the second one is scheduled (or not), calling the first one the 1st Annual may turn off newspaper editors and TV/radio news directors whom you are courting for publicity. You could call it the Inaugural Gulfport Oral Cancer Screening, and play off the sense of celebration associated with that adjective. Or just call it the 1st Gulfport Oral Cancer Screening. Either is accurate, and neither implies a time frame for a second event.

In answer to your question, if you wish to follow AP style: If you do this a year from now, it's the 2nd Annual Gulfport Oral Cancer Screening.

OK, putting my blue pencil away for now. (That shows you how long I've been doing this ...)


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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It always helps to be aware of what the newspapers think.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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