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#112847 02-20-2010 05:55 PM
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So far the search of OCF board for treating the granulation tissue on the PEG stoma has come up with going to the doctor/hospital that put in the PEG and getting an application from silver nitrate sticks. Just another hassle of the PEG, but has anybody had any luck with using a low dose cortisone cream (Triacet 0.1%) for 5-7 days to help remove the hypergranulation tissue. ?
I will ask my ENT for a prescription when I see her this week but was hoping someone out there had this or some other treatment I could do at home rather then yet another Georgetown Hospital visit.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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Charm,
I will ask the GI dr I see on Monday, I have developed this at my stoma site ever since my stitch came out (since Dec). I want to try the Triacet first before the nitrate sticks because I don;t want to deal with it hurting and the fact that it can cause damage to the healthy tissue if you accidentially apply it there. I'll let you know what he says.


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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Antibiotic cream works best for me. The silver nitrate creams and cortisone didnt work.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Thanks ESikon for checking. My ENT may not be as up on this issue as a Gastro doc.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Thank you Christine

I had been using triple antibotic cream and while it was not getting infected, it wasn't getting any better. I just tried a 1% hydrocortisone cream - OTC - last night and it at least relieved the itching.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jun 2009
Posts: 440
Platinum Member (300+ posts)
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Okay Charm, I just left the GI docs office (now waiting for my next test) and he ended up doing the silver nitrate sticks on me (ouch!) and then gave me a script for steroid cream....betamethasone. I asked about the triacet and he said i could try it but he hasn't heard of too many patients with luck on using it. I asked if the hypergranulation ends up comign back and he said chances are yes but then there are some that it doesn't, I pray I'm one of those lucky few. The "extra" tissue is suppose to slough off in a day or two--yippee!!

I hope that helps alittle.


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Posts: 3,082
Finally got my prescription for silver nitrate sticks. They look cool. They come in a pack of 100 (ten cardboard envelopes with ten sticks each) and with insurance cost only five dollars (the uninsured price is listed as $45). I will try them out late tonight. It will certainly be much easier than making an appointment, driving to the hospital and waiting only to have the doctor touch the exact same wooden stick with a silver nitrate tip against the tissue.
The prescription was generic for "silver nitrate applicator" and the brand dispensed was "Arzol - for simplified Nitrate therapy". The insert says the combo of silver nitrate (75%) with potassium nitrate (25%) is caused "lunar caustic"
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
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My GI Dr did not recommend anything. He looks at mine and says it looks better than others he has seen.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
Joined: Jun 2007
Posts: 10,507
Likes: 7
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Patient Advocate (old timer, 2000 posts)
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Hope it does the trick and heals your wounds quickly. I know mine can hurt like heck for a few days when I lift too much and strain it. It currently has a red piece about the size of my pinky nail. If it works for you, then I will ask my doc for a script.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jun 2009
Posts: 440
Platinum Member (300+ posts)
Offline
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Joined: Jun 2009
Posts: 440
Good luck Charm, did he give you instructions on how to use them? I know you shoud be careful not to get it on the "healthy" tissue/skin and the doctor neutralized it after he was done by putting some saline on it. My tissue sloughed off and is good as new and I no longer have that naggin pain there, hope it stays away and doesnt develop again!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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