#11316 07-11-2007 02:04 PM | Joined: Jul 2007 Posts: 3 Member | OP  Member
Joined: Jul 2007 Posts: 3 | Sorry for the urgency. My aunt in her 70's has been treated for a verrucous carcinoma on her gum, she has completed radiation.We are having a problem with an infection in the bone primarily caused by dental inplant - she can not wear dentures bad gag reflax. We would like to find a specialist, the local dentist is not handling this well. We are in Western MA. Thank you.
Loulou
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#11317 07-11-2007 02:06 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | What kind of Dr are you looking for ? and I am not good with western MA is that closer to Boston or NY ?
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#11318 07-11-2007 02:47 PM | Joined: Jul 2007 Posts: 3 Member | | OP Member
Joined: Jul 2007 Posts: 3 | We are about an 90 minutes from Boston. We need an oral surgeon/dentist that specializes with cancer issues.
Loulou
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#11319 07-11-2007 03:14 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | The dental department at your treatment center should be able to refer you to someone qualified in your area. There is also a book, The Best Dentists in America, by Steven Naifeh and Gregory White Smith that lists dentists by their specialty and area in which they are located. I would guess that if you found someone in this book in your area, that if they couldn't help you, they could refer to you to someone near that could.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#11320 07-11-2007 03:31 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | You could also try calling the dental schools in Boston (Harvard, Tufts, BU, etc.) and see if any faculty members specialize in cancer-related problems.
Dana-Farber/Brigham & Women's Cancer Center or Massachusetts General Hospital Cancer Center should have dentists on staff (or available on referral) as well.
-- Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#11321 07-11-2007 03:34 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | I was going to say Dana Farber ..I went there and they are phenomenal !! SO I mean you can call and ask if they know someone or even have a dentist on staff .
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#11322 07-11-2007 03:35 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Are you more in like the springfeild area ?
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#11323 07-11-2007 07:15 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | It sounds like she may need HBO. Most of the major cancer centers have dental oncologists. I would seek one of those as quickly as possible.
Infections can be very serious post rad.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#11324 07-12-2007 12:40 AM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2005 Posts: 624 | I would suggest Dana-Farber -- if they do not have the facilities on site they will have a regular referral dental oncologist at one of the area's dental schools. Osteonecrosis is a real risk with this infection, as mentioned HBO treatments may be neceassry...
Gail
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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#11325 07-12-2007 10:07 AM | Joined: Jul 2007 Posts: 3 Member | | OP Member
Joined: Jul 2007 Posts: 3 |
Loulou
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