| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
OMG!!!!! The kind of tube you have is NOT supposed to do that!!!!! I have the same kind a J/G tube and still call it a PEG.
I am surprised that your docs make you sit in post op. I walk in, dont even have to change, get on the table lift up my shirt and they drape me with sterile cloths. Then they lidocaine the site and change it out while I watch on the screens. Less than 10 minutes later, Im walking out the door with my shiny new tube. My last one also lasted longer than normal, it made it for 4 months before it sprung a leak. You are a brave man to do it without pain meds.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Christine.
Thanks but I confess that as usual, I game the system by having some percocet ready to crush and syringe down my brand new tube before I get into the car. I am amazed at the stawarts here (like Wanda's husband) who go without prescription pain killers the entire TX. Especially since with the exception of the fentanyl patches, the pain pills for cancer are the same ones I used to take recreationally forty plus years ago. I couldn't pass them up when they were finally legal although the high factor seemed to elude me this time around.
I am envious of how efficient your doctors are, I have to wait at least a half hour plus they insist on making a big deal of it, replete with wheeling me into a surgery room on a gurney etc. I protested I could walk, but they claim it's insurance issues.
It was quite a shock to have the balloon fail, but actually very good timing. The newest bump up to 75mg on my Thyroid pills has emboldened me to fly out with my wife to Albuquerque to visit Santa Fe and Taos next Thursday. Having it fail on the trip was one concern that I won't have. I will post my TSA stories upon return.
Charm
Last edited by Charm2017; 05-28-2010 11:37 AM. Reason: typos
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2009 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 71 | Right on Charm. You are always an inspiration.
mark
11/1999 SCC tongue - surgery
1/2000 Met(s) in lymph nodes - modRND
2/2000-4/2000 RT ~6 weeks
end of 2006 SCC tongue - surgery
1/2008 SCC BOT - surgery / PEG installed
2/2008 chemo & RT
4/2008 last time I consumed solid food by mouth
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Charm - ask me about SF. I lived there for years... actually was diagnosed with this shit while I lived there. Still have friends that have pull in SF, own restaurants, things worth doing, seeing, stuff to stay away from cause it's a waste of the little time you've got. I was born in Albuquerque, and am not that fond of it. Taos is good for 1 day. When it's time to ski, that's another story. Way small but the drive between SF and Taos is really sweet.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jul 2010 Posts: 2 Member | | Member
Joined: Jul 2010 Posts: 2 | my mom just had her peg tube inserted about 3 weeks ago now and was told at the time that it probably would have to be changed in 6 months or so perhaps sooner if it clogs etc....
how are you making out on your food - mom is only pumping at 40ml/hr and seems to vomit once a day or so.. having trouble digesting have you had a similar experience?
mom just dianosised with sequamous cell CA hypopharynx - would be cured with radiation -however she does not qualify as she already had radiation in same area years ago.... now has feeding tube
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sunshine, the feeding tubes Charm and I discuss are not the regular peg tubes. I had my first feeding tube for a year and a half, it was a regular peg tube. We have something a little different called a J/G tube.
Water down the formula as I explained on your other post.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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