| | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) |  "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 |
Thanks for posting info about these garments and your experience. This is something that I have been looking into.
For anyone in Australia trying to find somewhere that they can get information about these and/or purchase these edema garments, they won't be available here until about mid April.
I have been in contact with the company and they are currently in the process of finalising their licence to enable them to sell their products here.
As soon as they finalise the process and the garments are available here, they will let me know and provide me with the list of the stockists throughout Australia.
I will pass that on as soon as I know.
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Feb 2010 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2010 Posts: 55 | Is the Solaris garment worn on the neck or on the chest? I went to the site and could find nothing for the neck. Help
Brother Dx oral cancer March 23. Invasive Squamous Cell Carcinoma: Mod Dif Anterior Floor of Mouth, Peridental Soft Tissue, Right Bony Margin. Lymph Nodes 0/56 Stage II,pT2,pN0 2.8 cm
I was Dx b/cancer 9/2007. IDC Stage2 Grade2 2.4 cm 0/8 Nodes ER+ PR+ Her-2 Rad 33 no chemo.
| | | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | It is wore on the head and neck. Sort of looks like a scarf and cap combined.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Feb 2010 Posts: 55 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2010 Posts: 55 | Carmen, I will look again on the site. I carried a stuffed animal under my arm for about six weeks. It's been over two years and so far, no lymphedema. I hope my brother will be as fortunate. Does it help to sleep in a recliner after oral cancer surgery? I would think that lying flat could cause accumulation of fluid. Congrats on your clear PET. 
Brother Dx oral cancer March 23. Invasive Squamous Cell Carcinoma: Mod Dif Anterior Floor of Mouth, Peridental Soft Tissue, Right Bony Margin. Lymph Nodes 0/56 Stage II,pT2,pN0 2.8 cm
I was Dx b/cancer 9/2007. IDC Stage2 Grade2 2.4 cm 0/8 Nodes ER+ PR+ Her-2 Rad 33 no chemo.
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I rested my arm on a stuffed animal after both neck dissections. Helped to keep the drag off the shoulder muscles and alleviate the associated back ache. Still sleep with it.
I think keeping the head somewhat elevated also helps with the drainage. I slept on a stack of pillows so I would think a recliner would help also.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | |
| Forums23 Topics18,248 Posts197,136 Members13,320 | | Most Online1,788
Jan 23rd, 2025 | | |
|
