| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Everyone, its me again!! Just wanted to keep you posted on walk events coming up!! If you are in any of these areas, your support would be greatly appreciated and you would be representing OCF!! If you need more info, just drop me an email.
March 13th -- Nashville, TN
April 3rd --- Howard University, Washington DC
April 10th -- Chattanooga, TN
April 17th -- Baltimore, MD
April 17th -- Philadelphia, PA
April 17th -- Rossville, Indiana
April 24th -- New York City, NY (NYU)
Thank you!!!
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Dec 2009 Posts: 12 Member | | Member
Joined: Dec 2009 Posts: 12 | Is there or will there be anything in the Dallas, Tx. area?
New to this.
Brother has had numerous surgeries.
Is currently recovering from complete removal of his tongue.
He is a marathon runner, golfer.
Never smoked or chewed, casual drinker. | | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Danae, Thanks for posting! I actually did just recieve an email from the Dallas area. They are planning something in the next few months. Once I have more information I will let you know. I am calling the organizer today or tomorrow to get an update. So sorry to hear about your brother. I too, had a brother with tongue cancer, and that is how I got involved with spreading awareness. I wish him and your family all the best in this battle. It is a terrible disease and getting the word out is our main ojbective. I will be in touch. If you have any questions, you can email me at [email protected] or post it here. Take care Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Dec 2009 Posts: 12 Member | | Member
Joined: Dec 2009 Posts: 12 | I will continue to follow your postings. Would love to get involved in the Dallas area.
Thank you for all of your hard work. | | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 |
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Theresa,
Sorry, no events for Houston right now. But you never know, I get calls and inquiries all the time. If you ever want to do something, let me know!
Danae,
Did speak with the organizer. The event is set for May 1st, it will be a walk associated with the Concords Baptist Church Make a Difference Day. As I get more details, watch for my posts. It is being organized by students from Baylor Dental School. When we get things finalized, it will be up onour website as well. Take care!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Dec 2009 Posts: 12 Member | | Member
Joined: Dec 2009 Posts: 12 |
Susan, Thank You for the quick response!
I will continue to monitor your postings.
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | No problem!! Glad you want to be involved!! Thank you so much!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Susan,
I was talking to my husband about this last week. Is there anything in the San Antonio area? If not, I may want to check out the one in Dallas. What does one have to do to organize one, maybe teresa and I can do something together in Houston? I just want to get involved somehow, let me know!
Elizabeth
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 66 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 66 | If we did something in Houston, I know we could get doctors from MDACC to do the screening part for us.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Elizabeth, I just got back from Texas today!!! My sister lives in Flower Mound near Dallas. She will be attending the Dallas event as well.
I will give you a more detailed email tomorrow. Thanks for wanting to get involved!! It sounds like a plan!!!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | OKay Susan, look forward to your email!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Dec 2009 Posts: 12 Member | | Member
Joined: Dec 2009 Posts: 12 | Susan,
I haven't been on in a while but am still interested in participating in the Dallas Area event.
Do you have anymore info on this or who I can contact so I can be of some assistance.
Update on my brother...his back and chest wounds are still healing. Has been suffering from back pain. Has therapy twice a week, visiting nurse twice a week. Is able to go for walks now and is really enjoying that. His neck is very far forward and I think this is what is causing the back pain. He had another surgery on Friday to remove the plate in his mouth that was put there when they broke his jaw. He is with my Dad and hopes to be able to go home by the first of April and live on his own.
I don't know how he deals with all of the pain. I am so proud of him and his courage.
Thank you,
danae | | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Hi Danae, Sounds promising for your brother!! I will keep him in my thoughts and prayers! I dont know how they keep going either after all the pain and suffering, I have a toothache and I am whining!! They are all heroes in my book!! The contact for the Dallas walk is Danyelle Scott, her email is [email protected]. It is not a huge walk, but it is conjuction with a health fair as well. I am emailing another OCF member tonight about maybe doing another walk as well. I am late in replying to her, but I will let you know as well if that pans out. Take care Danae, anything else, please let me know!! Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
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