| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Suzane, you have been great in the forums and I am so glad you got the news you needed to cheer you up. Congrats and don't forget to stick around posting.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Suzanne,
I am so happy for you! Now you can get on with living and following your dreams. All the best to you and your hubby.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Michelle,
Sorry for the dealyed response:) We're moving and I've been surrounded in boxes and tape!!
Alright...here is my timeline. Diagnosed in March 2007. Went to Penn and had 3 surgeries. I didn't like the doc and he always wanted to cut..cut...cut. Everytime it hurt more and the healing took longer. So I went to Fox Chase for another opinion. They basically said the same thing which is to watch it. So I switched docs and went to FC for my follow ups. I was going every 2 months. I still had some pain and we were just "watching" and I didn't feel comfortable. So we decided to go to Sloan for a 3rd opinion. I saw Dr. Shah there and he said the same thing, which is to watch. To me that is the hardest part and I had to learn to live with that uncertainty and trust my doc. Since Dr. Shah said the same thing I decided to stay with my doc at FC. So, no, they did not miss anything:)
Since 2007 I am much more confident in myself and knowing my body and trusting my doctors. I hope this helps and feel free to send me PM. I would be happy to discuss anything:)
Jim...I will always be on the forums. Everyone here has helped me so much and still do. Nothing makes me happier than to return the favor and help others.
Last edited by suzanne98; 02-14-2010 09:02 AM.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Suzanne, be careful if you help move the boxes. They can create a strain which surely would be good for you. Good luck with your new location and may you be happy as you deserve.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I will be careful Jim...I promise. But I'm not good at watching people move my things so I will be helping:)
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL you are like me.. Just can't be idle. If it needs done.... do it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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