| | Joined: Jan 2010 Posts: 15 Member | OP  Member
Joined: Jan 2010 Posts: 15 | Debbie, it does sound like Jim and I are on almost exactly the same path. Today is Monday morning and I just had tea and toast for breakfast w/o too much 'after burn'. Try giving Jim a Zantac or Pepci AC pill each morning and before bed - it seems to be helping me, as well as the Ginger root pills. I have rad tx #6 today and I'm not sure if I will be getting the Ethyol injections or not. I have mixed feelings about it - it will be a good thing in the long run since it will help preserve salivary glands, but it made me so sick! Will wait to see what the onc doc suggests. If you want to email me anytime - please feel free - [email protected]. Good luck - I hope Jim feels better soon, Chris
SCC Right Tonsil (Stage 4 T1N2bM0). Surgery to remove lump in neck on 12/10/09; SCC dx'd 12/15/09; surgery to remove tonsils and biopsy done on 12/29/09. Right tonsil found to be primary; PEG surgery 1/29/10. Will begin TX-35 rads and 3 chemo (cisplatin) on 2/8/10.
| | | | | Joined: Jul 2006 Posts: 16 Member | | Member
Joined: Jul 2006 Posts: 16 | Hi Chris,
I was given IV Emend on my first day of chemo, then followed with a pill on dsy 2 and day 3 after. About day 5 the nausea hit me like a ton of bricks. I had to go to the ER and get a couple of bags of fluids and they gave me the Zofran but it didn't work that well. Phenergan worked better for me. At least now I know what to expect for the next two rounds.
8/2006: SCC, right lateral tongue, well differentiated, superficially invasive. 10/2009: recurrence, rt lateral tongue, surgery, rt mod neck dissection. 2/2010: metastasized node under left mandible. 3/2010: Induction chemo 3 rounds, Cisplatin, Tax, 5-FU. Surg and rad to follow.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | First Happy BD.
Most if not all of us get the 3 day regimen of Emends followed by Zofran. My first treatment of Cisplatin was OK, my second was bad and my 3rd was almost impossible re the nausea and everything else it brought with it. I really didn't find anything that controlled my nausea but others have so like everything associated with this cancer and it's barbaric Tx, we can all respond differently.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2010 Posts: 6 Member | | Member
Joined: Feb 2010 Posts: 6 | re the Emends . I had three days as per treatment and have also been give Dexamethasone and Motilliun to take for three days and 6 days respectfully. I only need chemo Cisplatin on one day per week for 7 weeks and rad 5 days per week for 7 weeks . the nausea has woken me up 2 mornings since Thurs which was chemo day. awake at 6 and meds and cant get back to sleep for a decent rest ...I do so far get a good nites sleep. Happy Days and very early for me yet but thanks everyone for the posts and advice. god bless. Rose 10 | | | | | Joined: May 2009 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2009 Posts: 72 | Emend was a godsend for my husband. We tried round without it and it was bad nausea. He was also on 2 other drugs. After the third cisplatin treatment we had the nausea under control.
Vanessa
Jeff age 49 DX 5/8/09 Tonsil cancer T2N2BMO. Tonsillectomy 5/14/09. TX: Cisplatin 3x's every 21 days w/ 33 Rad concurrent. 2-3 nodes on right neck affected. PEG 7/10/09. Chemo/rad start 6/12/9, TX finished 7/28/09. Extended TX
3 more chemo/Cisplatin/5FU/Docetaxil start 9/11, Clean PET 10/29/09.
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