| Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | ok so what is bolus. i get the gravity, that just hanging a bag from above, right?
andy is just now starting to use the PEG, i have been using a syringe. but he can still eat a little soft food, mashed potatoes is his food of choice right now. he is on a day to day menu since things he could tolerate yesterday, he cannot tolerate today. (but mashed potatoes have been hanging on the longest lol).
the MO supplied us with osmolite 1.2 cal. i am looking into jevity 1.5. the MO said he needs approx 3000 cal a day.
i have looked at past post where bolus is mentioned. can someone give me some info on this...
thank u all, teresa
P.S. HAVE A VERY MERRY CHRISTMAS TO ALL!
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I didn't have a Peg but I believe bolus refers to using a syringe and gravity through a feeding tube.
If you look at the bottom of any page and click on SEARCH and type in say bolus it will take to any site discussion dealing with that word and remember this site is specific to OC so it's a much better source than say Google.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 |
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Bolus is where you push the fluid slowly thru a syringe. Gravily is where you use a syringe and pour the fluid into the open syringe and hold it up so it slowly goes into the peg tube. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 |
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | your welcome
Just be careful with the speed. Slow works best, fast will make him ill and he will throw up everything you put in. This is why the pump works so well. I use mine overnight set at 100. I set it up and start at 4pm while Im watching TV. Then when Im ready for bed, I move it into the bedroom, add another can and more water and let it run all night.
Have a towel ready in case of spills or illness. If using the pump overnight, have him sleep propped up with at least 2 pillows. I have the head of my bed elevated 6" and still use both pillows. The pump method required sitting up or being propped up.
You can always check with a nutritionist or his PEG doc for pointers too. They might not be as helpful as people who have actually used the PEG. If you need help or have questions, please ask. It can be tricky learning which method is best. Both the bolus and gravity are much faster than the pump. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | oh my...i definately dont want to do it wrong and make him more uncomfortable than he is. the thought of having him puke and strain his throat muscles is scary.
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Teresa
Dont be afraid of trying these ways to help Andy. Its going to be trial and error to figure out which way is the best. Both the bolus and syringe are much faster than the pump. In my opinion, I would suggest trying the syringe way first. You would open a can and suck up a syringe full of it. Feed it slowly thru, I would say make it take you 5 minutes to get the feed him the full syringe. Wait a couple minutes and do another syringe. Afterwards flush out the tube with 2 syringes of lukewarm water. This needs to be done while he is either propped up in bed or sitting up. Make him sit still for at least 15 minutes after the feeding. Cold water will cause cramping and water too warm will make him feel bloated.
Sounds complicated but its really very simple. This is something Andy can do also. Best of luck with this. let me know how it works out for you. If he doesnt have a pump, ask the doc for one. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Teresa
Yes it is confusing at first. As noted, Bolus just means filling the syringe & pushing it thru the PEG tube. An 8 oz can takes under 5 minutes. For me gravity meant using the feeding bag up on a pole that drips down into my PEG. An 8 oz can takes 35 minutes for me that way. I see that Christine & Angelia refer to gravity as using the syringe instead of feeding bag to let "gravity" drip it into the PEG. I have never used a Pump as the gravity system with a feeding bag on the pole is slow enough for me. I am working up to doing one Bolus feeding a day with the syringe but that sometimes upsets my stomach. Finally, last but not least, what type of holiday would it without using the best (actually the only good part as far as I am concerned) part of having a PEG: using the syringe to bolus feed wine down it. Beer works but can be fizzy & upsetting. Wine is the right consistency plus the alcohol cleans out & sanitizes my Y extender tube and the PEG. 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I do not have any gravity feed bags, so I do use the syring without the pushing object. I just let go down in on its own. I do adjust the flow using the clamp on my tube and that has helped me alot. I still can not get more then 2 to 3 ozs at a time without getting nauseated and an upset stomach. At times I even feel bloated. UGH
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Oh Charm, please take it easy on the spirits!!!!! Im sure Andy is on meds that wouldnt react nicely with alchol. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | Charm, u make me laugh!! if u can tolerate the spirits...i say go for it, and do one more for andy!!
thank u all for ur advise! i guess i was just freaking a little. i am better now. but the thought that i could actually cause him more pain when im trying to help was scary.
today is the day...wish me luck!
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Christine
Oh, but the pain meds do in fact react very nicely with alcohol. Unlike the weight loss, I did tell my doctors that I would continue to take pain medications and alcohol - as that way I needed far less opiates and only 50 mcg fentanyl patches or 20 mg oxycodone. Of course I am now down to one little Percocet a night so not really an issue. I appreciate your concern though. I wanted to comment on your OCF blog, but instead will just say it here. It is so unfair the hand that you have been dealt. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Nov 2009 Posts: 92 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2009 Posts: 92 | I got my PEG Christmas Eve, and have had about 5 feedings (all delivered by nurse on duty). Most of the nurses seem to prefer filling the syringe, and letting it drip on its own into my stomach. Only one used the "push" method.
If they have taught you how to check for residual content, do it. It helps you to know if there is too much currently in the stomach to do a comfortable feeding. I got a feeding after I had eaten, and it made me ill. I also had a nurse put some air in my line to clear it, because I'd said it was nasty looking. she wanted to help me, but the air gave me gas.
Keep up the good work. soon you'll be giving folkslike mehelpful hints.
44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | i will be asking about checking for residual content. never heard of that.
i hate to hear you got your PEG on Christmas Eve...hope you are feeling better. i am doing the fill and let drip...so far so good. he is still eating soft foods so right now, it is just to keep his nutrition up.
weigh in is tomorrow...we will see how it worked. i know some weight loss is normal, but lets hope its not 9 lbs again.
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | How do you check for residual content?
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Nov 2009 Posts: 92 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2009 Posts: 92 | To check residual, push plunger in syringe, insert in tube and pull. Right now, nurses don't seemto agree on what's too much. One says full syringe, another says multiples, one says ask the nutritionist. I have a booklet, but the spaces listing acceptable residual amount weren't filled out. Booklet does say a jejunostomy tube should have little or no residual,so may not be necessary to check it. booklet also tells you to check for residual, but doesn't say how ("ask your healthcare professional . . "). Nurse did tellme to be sure to push residual back in, because it contains needed electrolytes.
44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18
| | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | I know that for my husband, the content of the residual was of importance. Too many solids meant that he was getting too much. I think that we usually pulled out about half a syringe full.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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