| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Oh Charm, please take it easy on the spirits!!!!! Im sure Andy is on meds that wouldnt react nicely with alchol. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | Charm, u make me laugh!! if u can tolerate the spirits...i say go for it, and do one more for andy!!
thank u all for ur advise! i guess i was just freaking a little. i am better now. but the thought that i could actually cause him more pain when im trying to help was scary.
today is the day...wish me luck!
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Christine
Oh, but the pain meds do in fact react very nicely with alcohol. Unlike the weight loss, I did tell my doctors that I would continue to take pain medications and alcohol - as that way I needed far less opiates and only 50 mcg fentanyl patches or 20 mg oxycodone. Of course I am now down to one little Percocet a night so not really an issue. I appreciate your concern though. I wanted to comment on your OCF blog, but instead will just say it here. It is so unfair the hand that you have been dealt. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Nov 2009 Posts: 92 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2009 Posts: 92 | I got my PEG Christmas Eve, and have had about 5 feedings (all delivered by nurse on duty). Most of the nurses seem to prefer filling the syringe, and letting it drip on its own into my stomach. Only one used the "push" method.
If they have taught you how to check for residual content, do it. It helps you to know if there is too much currently in the stomach to do a comfortable feeding. I got a feeding after I had eaten, and it made me ill. I also had a nurse put some air in my line to clear it, because I'd said it was nasty looking. she wanted to help me, but the air gave me gas.
Keep up the good work. soon you'll be giving folkslike mehelpful hints.
44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | i will be asking about checking for residual content. never heard of that.
i hate to hear you got your PEG on Christmas Eve...hope you are feeling better. i am doing the fill and let drip...so far so good. he is still eating soft foods so right now, it is just to keep his nutrition up.
weigh in is tomorrow...we will see how it worked. i know some weight loss is normal, but lets hope its not 9 lbs again.
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | How do you check for residual content?
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Nov 2009 Posts: 92 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2009 Posts: 92 | To check residual, push plunger in syringe, insert in tube and pull. Right now, nurses don't seemto agree on what's too much. One says full syringe, another says multiples, one says ask the nutritionist. I have a booklet, but the spaces listing acceptable residual amount weren't filled out. Booklet does say a jejunostomy tube should have little or no residual,so may not be necessary to check it. booklet also tells you to check for residual, but doesn't say how ("ask your healthcare professional . . "). Nurse did tellme to be sure to push residual back in, because it contains needed electrolytes.
44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18
| | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | I know that for my husband, the content of the residual was of importance. Too many solids meant that he was getting too much. I think that we usually pulled out about half a syringe full.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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