| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Dark Vader here...Although I hope so I don't think he will be feeling great by spring. He will most likely have a very long, frustrating and confusing recovery lasting up to 2 years with the first year the most disappointing or should I say challenging. He will most likely still be very weak by spring time and will still be facing taste and saliva issues that would make most people hate life but since he will be improving from a near death state post Tx, it will be viewed as a vast improvement.
I have never seen one on this site that starts out having a bad reaction earlier than most do better than most as the Tx progresses. This also does not mean that he will continue to fare worse than most either. Heck this site nor any professional out there has never done any study to my knowledge what is normal during Tx anyway but I'm just basing my comments on what I've seen and of course my own reactions.
My personal view in dealing with OC Tx patients and their CG'ers is to prepare them for what is usually the norm which isn't pretty at all so as not to let them think they are abnormally worse than most. If my advance warnings never play out then so much the better.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | david,
you are definately NOT darth vader...but that did give me a laugh. i will take a laugh whenever and where ever i can get it.
one thing i appreciate about this site is that i hear it like it is. i may not like it, but i need to hear it so i can prepare for it.
masking the truth is useless info!! the down and dirty truth is much more helpful. but it still doesnt keep me from freaking out for a few minutes lol.
at this point, we are just hoping for him being strong enough to travel to Vegas to take our daughter for her 21st birthday on Sept 30...Spring did sound sooooo good though. but by Spring, (hopefully) all treatments will be over and recovery begins!
Teresa
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CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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