| | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 53 | Well after my one day of feeling good i have now had a week of not being able to eat or drink, as i have been sick constantly I have been taking all sorts of stop Nausea potions from the doctor most are making me sicker.
The doctor has stopped Chemo for now I am going to have a Peg I now need your help guys.
Did you have these problems how can I get over being sick.
I have to have 5 more chemo bags, how am I going to take them
with out feeling being sick.
I have lost 10 kg
Its taking all my strength to just write this hoping you can help me.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | What type of chemo Jon? I still have my drugs here from when I had cisplatin and the nausea drugs worked well. I can tell you which ones I had - if we had the same chemo.
One of the problems I had with chemo was that it dropped my blood pressure dramatically which caused numerous fainting spells and the expected black eye (lasted for a month!). I also found some of the anti-nausea drugs caused extreme agitation in me - I could NOT sit still for love or money - drove me nuts - but I didn't have nausea.
Let me know about your chemo treatment.
Hang in thee.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Jon,
I'm sorry to hear your news. I wish I could be of more help to you and I'm sure the nausea is a terrible feeling. There are a lot of people who have gone through the same thing so I'm sure others will join Donna and share their wisdome with you. I hope you can handle the last of your chemo. We are here to support you.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 53 | Thanks guys the problem is im not eating as I am sick if I do, I have only had one cisplatin with 5 more to go and 23 more radiation to go.
Yes please telll me the name that will stop sickness.
I just have to smell the wrong smell and im sick.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jon,
Emends is often given for nausea. It's a 3 day regimen. One pill a day for 3 days beginning the day you get the chemo. There are also many different "breakthough" nausea meds but I was also one that suffered a lot with nausea. After my second big dose of Cisplatin nothing seemed to work for me.
I also did not keep up with my daily calories and hydration and it led to trips to the ER to get fluids, 30% total weight loss and really worse of all was the constipation that resulted near the end of my Tx ordeal. So not sure if a Peg is an option or even the nasal tube but you better find something that works or you will bring on a host of unnecessary complications to your already nasty Tx.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | Jon, I'm sorry you are having such a tough time with the nausea. My husband had a really rough time also. He tried the Emends and that did nothing. He was on both Zofran and Compazine all through treatment and up to a month after treatment ended. I think the nausea was a combination of the Cisplatin and the mucus. They also would give him anti-nausea drugs in the IV before the chemo.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
| | | | | Joined: Sep 2009 Posts: 53 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 53 | Ok dave and all this is the very same as the problems I'm having its as if being sick is like a cattle prod and stops you from wanting to eat so as the food i have tried to eat tastes nasty any way I do not want to eat at all.
I think a PEG is the only answer.
what are the for and against a PEG any one.
"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | The PEG question has been debated many times on here. Its been a lifesaver for many, including myself.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | The main part of the OCF site has excellent information here. You can also look here -- go to page 124 of the .pdf file. As Christine notes, this topic has been discussed repeatedly. If you use the search box in the upper right corner or each forum page to look for PEG tube, you'll get 200 postings in just the last few months. (For some reason, if you search just for PEG, it won't work.)
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Jon,
For what its worth. I always looked at the PEG as an AVAILABLE lifeline just in case something like this happened to me. Anything you can do at this point to increase your hydration and calorie intake will have a direct effect on your health later.
I say get the PEG as soon as it can be arranged.
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
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