| | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | When they put that mask on just go to your happy place and try to take a nap. It isn't that bad. And in my experience the tech's were close by and on the one occasion I got sick (chemo related) - one of them must be a real fast runner because he was there in a flash.
I agree with David - eat, eat, eat all those things you want to eat and haven't because they are fattening. Now is the time to eat whatever you want and enjoy!
Before you know it, that PEG will be like an old friend..... always at your side and alot of times you don't even know it.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Bloop and Angelina,
I think it's nice that you are both starting this journey together. You both really seem to be doing great. When I found this site it made me feel good to know there were other people in the same boat so I imagine knowing that will be a good support for each of you. I will support you every way I can:)
So what are you ladies going to eat? I would be sure to eat pizza and a cheese steak. What are your favorites?
xoxo
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Sep 2009 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 60 | I've seen a couple of mentions here about the techs doing the radiation. I just have to say that the ones I had were the greatest, upbeat people I have ever met. It must be a tough job dealing with the likes of us, but they were always there with a smile and encouragement.
Flip
_________________________________
Age: 54 SCC Tonsil + 3 nodes
Radiation and Carboplatin
Treatment 4/1 - 6/7/2009
No surgery, no PEG
Never smoked
Drink socially (brew my own beer and love wine. A bottle of scotch lasts me a couple of years)
CT 11/4/09 No sign of envolvement in Tonsil or nodes
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | It does take a special person to work with cancer patients. Some of them have been less than kind but they are usually the ones in the billing department...lol I LOVE my docs nurse at Fox Chase. Everytime I'm there she says "Hi Suzanne...how are you?" In the sweetest voice. We chat and talk and I feel like I'm visiting an old friend. I don't know if other nurses work with my doc..I always see this one:)
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Never met a person at Fox Chase that I didn't like.
Now I'm going to be one of "them", but not sure exactly what my duties will be.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Bloop,
How are you doing? Did not get a PM from you yesterday. I know you have that dang PORT and PEG placed. Just wondered how you were doing with it.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2009 Posts: 138 | Yeah, I got the port and peg in yesterday morning. I have basically just slept since then. I need to take a shower and clean around the tube but I want to wait 'til my daughter's home which will be in a couple hours. Is your peg feeling any better? Mine feels about like when I had a hysterectomy only higher up. I hope it feels better tomorrow.
BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Mine still feels horrible, Can you take a shower with the port? I was told I could not shower for ten to 14 days or until the stitches came out. Got your PM.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Angelina,
10-14 days seems long. I do not recall waiting more than maybe 4 days. Also, you can protect the port with a plastic bag or tape. (check with our team though.)
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2009 Posts: 138 | She said I could shower and I do. I don't know that there are any stitches in mine. The doctor said something about using super glue - I think she was serious. There's just some plastic on my skin. It is now a week since my PEG placement though and it still hurts. I have an appt. Tuesday. I'm hoping she says it's okay. I think it is, but I just wasn't prepared for the pain.
BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
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