| Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | They clamp you down? OMG I think I may pass out. I think some sedatives are in order. UGH
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Angelia,
My hubby is very clautrophobic and was worried about the treatments and how he was going to get thru them. First of all, the mask is mesh so you can see thru it and they cut openings for your mouth, etc.
Bill was able to go thru the treatments just fine as he learned coping skills and going "somewhere else" during the treatments. He did it without meds which is good as his treatments were twice a day and that would have been problematic.
You can do this...you are stronger than you think!
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: May 2009 Posts: 132 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2009 Posts: 132 | Angelia, I think you'll be all right after the first few sessions. My doctor let me take some Xanax to calm my nerves before treatment, and that worked great -- just zoned out and watched the big machine move around my head. If you focus on your "out breaths" it can really help, too.
Remember, too, that the techs will be watching you the entire time. If you feel panicked, you can raise your hand and they'll come in and un-snap you very quickly.
Visualize those rays cooking away your cancer cells one by one -- it's all for a good cause!
You can do it!
Chrissy
Stage 2 SCC upper right palate Hemi-palatectomy and maxillectomy 5/28/09 Six teeth gone IMRT x30 starts July 13. Completed 8/26/09 Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Angelia,
Look at it this way, at least you can prepare yourself mentally knowing what to expect. I was clamped down during a trial run without any advanced b notice. That's what shook me up more than anything.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Angelia, I didn't feel clamped down so it must not be that bad of a feeling for most of us. You will do it the 1st time and not panic. Just reach out and hold my hand as I will be there in spirit. Jim Anyone that has to teach kids has to be tough. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Angelia and Bloop, Steve always said the radiation was relatively easy for him (mind you everyone is different). He said it was easier than he thought and over with pretty quickly each day. His biggest complaint was that he was uncomfortable on the hard table because he was so thin and had no padding on his bones. His mask didn't have a hole where his mouth was but was made of a mesh he could easily see and breath through. He wasn't a fan of the chemo though but still he got through it, just as you both will. As tough as it may get you have to get through it because the alternative of giving up is far, far worse. Hang in there both of you. And like Jim, I will also be holding your hands in spirit so you are not alone. Wendy
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
| | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Angelia and Bloop,
I made a science out of observing the machine as it moved around my head. I counted all my breaths when the machine made the humming noise that signaled that the radiation was flowing. I memorized all the small adjustments the machine made. Mostly I did this to keep my mind occupied.
As the sessions moved on I found I was getting a little more comfortable each time. The last few weeks I was actually falling asleep during the sessions.
When my treatment started, I asked the technicians to cut a hole for my mouth and they did. My center also offered warm blankets that they place over you at the start of every treatment.
Kelly
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | In addition to the mask I had to lie straight with my feet pushing against a flat board with ropes attached to each end which I gripped with my hands to keep my body as rigid as possible.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Sep 2009 Posts: 17 Likes: 3 Member | Member Joined: Sep 2009 Posts: 17 Likes: 3 | Hey David, I had almost forgotten about the straps they tie us down with amazing how after 3 and a half years we rem the good stuff now. Fleetwood Mac was my music Dont Stop Thinking About Tomorrow. | | | | Joined: Nov 2009 Posts: 2 Member | Member Joined: Nov 2009 Posts: 2 | similar to bloop I was diagnosed 2 weeks ago via a biopsy, stage 3 base of tongue carcinoma, getting feeding tube next week and starting radiation in under 2 weeks. how does one prepare for this, outside of positive attitude? | | |
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