Previous Thread
Next Thread
Print Thread
Page 4 of 4 1 2 3 4
davidcpa #106199 11-01-2009 09:22 AM
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
Patient Advocate (1000+ posts)
Offline
"OCF across the pond"
Patient Advocate (1000+ posts)

Joined: Feb 2007
Posts: 1,940
Karen i cannot say that one word you have written sounds unfamiliar to me,and i am sure the same is true for many carers on this forum.The only part that is totally unfamiliar to me is the inclusion of a psychiatrist.The very idea of Rob ever going near a counsellor or a psychiatrist is unreal.I never thought that his behaviour after his treatment was anything but completely expected considering what he had been through,but it didnt make it any easier to bear.I survived for one reason only.The help and support of good friends here on the forum.He reduced me to tears of hurt and frustartaion so many times i lost count,until eventually i packed a bag and left for a while,but not once did anyone here chastise me ,they just kept up the support and advice on a daily basis.

Its a hard time,probably the worst time of the whole treatment really,so hard to understand.Rob slept 18 hours a day,didnt speak,wouldn't eat,wouldn't see anyone,got irritated by everything i did,and resentful when i insisted on medication or tube feeds,but if anyone did manage to get through the front door to see him,he lit up like a candle and insisted he was fine.

It passed in time as most things do and when things were really bad he was exemplory.Its fear and pain and the unknown.some men really step up to the plate,but some don't fare so well.Every one is different with different challenges to face and overcome so please dont have him committed just yet lol,in a few weeks you probably wont reccognise him.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #106243 11-02-2009 08:57 AM
Joined: Jan 2009
Posts: 476
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Jan 2009
Posts: 476
Hi Karen. I'm so sorry that your hubby is being so difficult. Everyone reacts different to treatment and a cancer diagnosis. Thank God my husband never took his fear, anger, pain or depression out on me. We have always had a very strong bond and I think dealing with major life issues such as a cancer diagnosis can either strengthen your relationship or fracture it. I have told many people that although this year has been one of the most difficult years of our life, it has also been filled with some of the most love-filled moments between John and I.

When John was a month out of treatment he literally couldn't talk or he would gag and throw up. He was on Zofran and Compazine for the nausea for over a month after treatment stopped. Is your husband on anti-nausea meds? This might be something to look into if he isn't. John would use a writing tablet and we "communicated" that way. His throat and mouth were much to sore to talk or eat anything. I don't have any experience with shrinks so I can offer any advice there. I personally think that most if not all cancer patients are somewhat depressed - who wouldn't be battling cancer. Sending you a hug and hoping your days get brighter.

Remember that you are his wife and not his mommy. He needs to take some responsibility for his own care.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
Page 4 of 4 1 2 3 4

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,916
Newest Members
Linda baldwin, TZwicker, Mareea, Crzyborgs88, Chevymudnut
13,223 Registered Users
Forum Statistics
Forums23
Topics18,209
Posts197,040
Members13,223
Most Online614
Jul 29th, 2024
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5