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Joined: Mar 2009
Posts: 147
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Mar 2009
Posts: 147
But during your regular Dr checkups are they doing blood work and checking your Iron and B-12. I was suffering fatigue and it was determined I was dificient in both. Weekly then Bi-Monthly B-12 injections really helped.

Last edited by Carmen M; 11-20-2009 02:43 PM. Reason: add a word to clarify

DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Well I just don't see the "slow recovery". It takes about a month for each week of radiation for most of us to shake off the effects. so please do the math. One reason I agreed to do the Patient's perspective on swallowing per Brian's request is that almost everyone who first posts here has vast over-expectations on recovery time that simply does not comport with the majority of experience that the OCF poster have suffered through.
I have never been a patient person, so I fully empathize with the frustration over the slow pace, but I have always been a realist.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Steve,

Another thing to watch is your TSH levels. I forgot to mention that when we talked today. Many of us suffer from Hypothyroidism which can also cause fatigue. A simple one a day pill helps right the ship.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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