| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Belinda, hope it was a good day for you today. Hows the intake? Hope its increasing even thoguh its difficult.
I must have missed the part about having a new baby. I am amazed by this. Treatments are so difficult sometimes and being the mother of a baby too is alot for anyone. In fact, just being a mother to a new baby takes a ton of energy.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2009 Posts: 21 Member | | OP Member
Joined: Aug 2009 Posts: 21 | CherylR,
I'm going to the St.Vincents oncology center on 86th street. It seems ok but sometimes I wish I would have taken a bit more time and went to a specialized cancer center. I was just really ready to get started since I had to wait for treatment until I had the baby.
Belinda Jo- Age 28 non-smoker, casual wine drinker, original tx 5/09, T3/N2 (now N0)/M0, 2 tongue surgeries partial glossectomy, Rad x 35 treatment began 7/8/09, no chemo, neck dissection 11/25 revealed 12 benign nodes!
| | | | | Joined: Aug 2009 Posts: 21 Member | | OP Member
Joined: Aug 2009 Posts: 21 | Hi Christine,
Today is better. My tongue feels better and I've been diligient about using the magic wash. I'm not doing much better with calories, I had an ensure for 250 cals and some chicken broth for 9g protein lastnight and about 3/4 bottle of water. So far today I'm not doing well. I'm going to try to get at least 2 ensures down and 2 bottles of water by 4:00 then see what else I can get down..it's a challenge but I'm up for it! Yes, being a mom to a newborn is very hard during this treatment especially when he pulls at my neck! But, he also gets me through it so the timing is actually a blessing!
Belinda Jo- Age 28 non-smoker, casual wine drinker, original tx 5/09, T3/N2 (now N0)/M0, 2 tongue surgeries partial glossectomy, Rad x 35 treatment began 7/8/09, no chemo, neck dissection 11/25 revealed 12 benign nodes!
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Belinda, It is amazing what you are going through while having a new baby to take care of. I certainly know what you mean about our little guys getting us through. When I got my diagnosis i was devastated but my boys kept me going. I love them even more now. How old is yourt little guy if I may ask? Good luck on finishing up those treatments.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 216 | Belinda - My husband had his ND at St. V's on 86th. Radiation and chemo through Methodist. All arranged by CENTA (Center for Ears Nose Throat and Allergies). Wishing you the best.
Cheryl
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Belinda, if you don't have a good blender buy one. There are so many things I have used mine for.Even some of the soups that are lumpy and taste the same after hitting them with the blender, LOL well, not actually hitting them but blending. Stuffed peppers, cabbage rolls are ok. Most things will burn your tongue abd hurt but you need the food so put up with some burning and pain. My advice might not be real sound tho. LOL I startd hyperbaric oxygen treatments tomorrow daily for the next 6 to 8 weeks. But you need energy for the baby.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2009 Posts: 21 Member | | OP Member
Joined: Aug 2009 Posts: 21 | Angelina,
My son is 12 weeks old tomorrow. He was born on June 1st and I started my treatments on July 8th to give myself some time to recover from childbirth.
Belinda Jo- Age 28 non-smoker, casual wine drinker, original tx 5/09, T3/N2 (now N0)/M0, 2 tongue surgeries partial glossectomy, Rad x 35 treatment began 7/8/09, no chemo, neck dissection 11/25 revealed 12 benign nodes!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Belinda
How sweet your baby must be. At 4 months old they are beginning to get happy and develop their personalities. Does your son laugh and giggle yet? When a little baby laughs it lights up the whole room with happiness.
He is reason enough to get thru this and move on to a better life without cancer. What a wonderful day it must be to come home to your little bundle of joy. I sure miss that my kids are grown.
Im glad you joined OCF. There are so many members here who will give you helpful info and support when you need it. I wish you the best of luck with your tx and recovery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hi Belinda
No Rob didn't have any underlying issues,he was as healthy as an ox and hadn't seen a doctor for 15 years.He was however a heavy drinker and a smoker and of course his diagnosis was missed by a negligent dentist who failed to identify his tumour when he saw it seven months prior to his eventual diagnosis.By the time it was found he already had a very large secondary and his survival chances were reduced to 30% from the outset.You have so much to fight for and thats half the battle,the other half is youth,strength and great doctors.
The very best of luck
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Aug 2009 Posts: 207 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Aug 2009 Posts: 207 | Hi Belinda,
You're a very very strong woman, per the above, you need to and WILL get through this, for your baby's sake, and more importantly your sake. Hope you have lots of love & help around you, don't forget, if anyone offers, say 'yes please'!! take care, you'll do good.
Jeanna
x
Jeanna
Wife/Carer of Rod, 56, Dx 5/3/09, SCC Oropharnyx T4 N2, End Tx 28th 07/09, 7wks Rad, 3 Cisplatin, primary tonsil, 4cm Lymph right of neck, 1cm left, in jaw & soft palate & base of tongue. Peg 06/09. CT & PET scans 02/11 - NED. Dentures 20/09/11, PEG out 28/10/11.
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