Previous Thread
Next Thread
Print Thread
Page 2 of 2 1 2
MrsGrant #101539 08-14-2009 06:45 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Shaylynn, I have a question for you. I did read your blog and appreciate all the pictures you posted.

You mentioned using the shower cap. How did you wash your hair with your neck so sore? I would imagine the hair and soap would get on your sore neck. Did you need the shower cap to keep your hair in til your neck started to heal?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #101551 08-15-2009 03:29 AM
Joined: Aug 2008
Posts: 716
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Aug 2008
Posts: 716
Funny...I never thought about the scarring and put nothing on it except whatever the doctors gave me. I did use the cream my RO prescribed. My scar just looks like a crease in the neck, I couldn't even tell people I was in a knife fight--they wouldn't believe me!!

My mother had mederma for something and gave me a tube; although, I didn't use it..I put it in the medicine cabinet and forgot about it...with everything going on I suppose scarring was the last thing on my mind.

Good luck though!


7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Ray1971 #101560 08-15-2009 07:29 AM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Hmmn, when I was young, my scars disappeared and skin restored itself just like Rays. I remember those days but unfortunately they had passed by the time I had my surgery. If I had not used the antibotic cream and lotions, my Frankenstein scars would not have healed into just knife fight evocative ones. It pays to be aggressive in treating the scar tissue and don't forget to ask about scar massage as that made a real difference for me also.
there was a thread on that last year
charm

Last edited by Charm2017; 08-15-2009 07:34 AM.

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #101605 08-15-2009 08:39 PM
Joined: Jul 2009
Posts: 16
Member
Offline
Member

Joined: Jul 2009
Posts: 16
Just wondering...is there anything we can use on the radiation damaged skin? My husband has a really bad area on the right side of his neck as the cancer was on the left and that's where the scar is for the RND so the damaged skin isn't really there anymore (I think they sewed right thru it!) but on the right side the skin looks pale and spotty...wonder if the Mederma would work there?


Jeani, caregiver to husband Art, 61 Dx left BOT SCC 9/08 peg 12/29/08 35x rad and 3x Cisplatin ended 2/22/09 Left RND 7/6/09 took everything and 4 of 30 nodes involved
MrsGrant #101995 08-21-2009 01:55 PM
Joined: Nov 2008
Posts: 72
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Nov 2008
Posts: 72
Staples have been out for a week now. Things are looking good.I have been using lotion & Vit E..the same as last time. I was just concerned how radiation will effect it (if it does)

Christine...the shower cap was a shampoo cap. I didn't take a shower after surgery until the staples were out. The shampoo cap is like a dry cap it just dampens your hair and for the body I just got nin the tub with a little ater.

Thanks again everyone!


*Shaylynn*
11.25.08 SCC of tongue diagnosed @ age 23 T2N2cM0
12.20.2008 Partial glossectomy & left neck dissection. Clear margins.
6.24.09-Pet Scans show 2 areas of concern
8.5.09-Recurrence-Perotid Gland and swollen node removal
9.29.09 Carboplatin & Taxol x8 Tomo x39
11.19.09 WILL COMPLETE TREATMENTS!



MrsGrant #102404 08-26-2009 05:22 PM
Joined: Nov 2007
Posts: 681
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Nov 2007
Posts: 681
When I had radiation for breast cancer, the RO nurse recommended a cream to be used 2x daily on the front of my upper torso, over the sholders around to the back. (Not to be used less than 4 hours before radiation). I used it as she said and had almost no sunburn effects from the radiation other than darkening of some warts and a mild itching. There was some redness which eventually faded. The surgeon who did the breast cancer also told me to use it after the free flap. I gave a tube to the ENT Oncologist and to the plastic surgeon who now recommends it to his patients. I used it on my face, neck and leg after the free flap reconstruction and am very pleased that I had little redness. After that surgery I also tendended to get very dry skin over my foot from edema and it helped there as well. My husband uses it on his elbows because they tend to get rough.

The cream is Skin Repair Cream by Medline. (medline.com 1-800-medline)

Hope this helps
Malka


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
Page 2 of 2 1 2

Moderated by  Brian Hill 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5