| | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Nancy
Let me join in the chorus of having an earache misdiagnosed for over a year, so it was stage IV when they finally found it after I insisted on a CAT scan after being told it "was all in my head"
OCF has been very active in promoting early detection.
Unfortunately as I replied in a different thread, I had zero symptoms for the recurrence.
Last edited by Charm2017; 08-10-2009 09:07 AM. Reason: typo
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 | Same here. Was blown off for 4 months with "you're young, don't smoke, don't drink, it can't be anythng bad". Had a brush biopsy by ENT, was negative. Went to ER twice with pain, was told to use mouth (louth?) guard, said it could be stress-related, etc. During my routine dental appt I asked my dentist to take a look, and he sent me to the oral surgeon to be biopsied ASAP. Here I am.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | I am one of the few who was diagnosed very early. I had a sinus infection and went to my primary doc. I also told him about a sore on the inside of my cheek that had been there about 2 months. My family doc told me flat out it could be cancer. He put me on antibiotics and sent me to the oral surgeon for a biopsy. The rest is history.
My family doc is the best. Before he even took a look, he said if the sore has been there that long and hasnt healed its a very good chance that its oral cancer. I wish more people had a doc like mine. My cancer was caught at Stage 1 all 3 times.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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