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Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
OCF is still not the leading candidate, but we are only behind by a few points. Please read the sticky post by Megan and then vote for OCF. Here is another incentive for doing an actual review of OCF: [quote]Plus everyone who writes a review is eligible to win fun wellness prizes such as a free copy of Everything Changes: The Insider's Guide to Cancer in Your 20s and 30s by Kairol Rosenthal, free milk for a year from Organic Valley Farms, delicious baked goods from Dancing Deer Baking Co., spa packages from Osmosis Day Spa and Sanctuary, hotel stays from Joie de Vivre Hotels, and more!
Share your experience[/quote]

Help recognize OCF as the premier cancer fighting nonprofit! Click below to write a review Win prizes for reviewing OCF


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Less than one percent participation by OCF members. I had no idea that one side effect of radiation or chemotherapy was a total inability to type a few sentences. I can think of no other reason that we have only 45 reviews when we have over six thousand members. Oh, wait, there can be a reason: my favorite vice: PROCRASTINATION. There is one week left, but this is the last weekend, so let's go. Click here NOW (please)
Easy way to support OCF
we can do this
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Dec 2008
Posts: 1,004
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Dec 2008
Posts: 1,004
I wrote my (shining) review:)


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Susanne

THANK YOU. The lack of response to Megan's plea has been very disheartening to me. Heck not even some of the frequent posters here have bothered to spend 5 minutes helping out OCF for free. (You know who you are and SHAME on you) I had hoped that the great majority of OCF members who never post more than a few times, then read or periodically check in would rise to the occasion. But with 53 reviews, that means 99% have not.
I knew we could count on you. Oh well, less than week left so I won't be harping on this for much longer.
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Apr 2005
Posts: 2,219
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,219
Keep on harping, Charm. You are the cheerleader for the cause.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
Joined: Jul 2007
Posts: 211
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Jul 2007
Posts: 211
Thanks, Charm - for keeping on folks about this (including me). I voted a few days ago.

Sophie


Sophie T.

CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
OCF is now up to 54, YEAH!!!!! Everybody who reads this post PLEASE take 2 minutes to write a quick review for OCF. Lets all help OCF to become more recognized. Only thru recognization will a cure or a better treatment program be developed. Lets get OCF the attention it deserves so oral cancer is more understood and treatable by early diagnosis.

http://greatnonprofits.org/reviews/profile2/the-oral-cancer-foundation1


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Oct 2008
Posts: 49
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Oct 2008
Posts: 49
I voted a few days ago. Please tell people how important the cause is...I have a family member who is the administrator for a non-profit cancer support/foundation that raises money for research...melanoma. "Support" means government support.


Donna

Caregiver to Hubby,Stage IVb, SCC to left tonsil, Mets to nodes, Tonsillectomy, Cisplatin,Taxotere,5FU x 3, IMRT 33 Rads + Carbo x 6, RND 03/09--Dx NHLymphoma 04/09, CT of chest, stom, pel--all clear, 05/09 Pet--all clear, 08/09 Pet--all clear
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
3 days left to vote The good news is that OCF reviews have just about reached one percent! As I type this there were 60 votes for OCF on the great cancer fighters site.
We are still way way behind the Pediatric alliance but that could be that both parents vote for that group while on OCF it is usually either the caregiver or the patient, almost never both who post. Still, if you are reading this post, please reconsider not voting and click here: VOTE OCF


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
OP Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
88 votes as of 3 am EST. Much better but not good enough. By now you should have gotten Megan's email to vote, but if you did not CHECK YOUR SPAM BOX as it was mistakenly automatically put into mine.
We are in striking distance if we can just keep up the "surge" we have going the last couple days. July 31 is the last day to vote, so please click here and vote: YOUR vote counts -help OCF
For all those who have pushed us up to 1.3% participation, Thanks, For the remaining 98.7% of you, what are you waiting for ? PS> I still see some major posters here who have not voted, not cool.
Charm

Last edited by Charm2017; 07-29-2009 12:34 AM. Reason: spam warning

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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