| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Mary, Awesome story and tell him I wish him a speedy recovery. BTW he most likely would have been staged a IV (perhaps a III) if he were diagnosed today with that factual pattern. Heck he could have been HPV+, maybe the first ever. lol
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | THat is a very long time Kevin. At the cancer survivors picnic this yr in Wheeling, West Virginia,all thought this older guy that was a 50 yr survivor was great. Your mom had to be one tough lady. Geez, 60 yrs and went thru all she did. WOW
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 71 | Within two days after I got my cancer diagnosis I found my longtime golf buddy�s brother had what seems like an almost identical cancer to mine. Lymph nodes in the same spot, but no primary was found. His cancer was in �95 and he�s been fine ever since. Also, I had to be reminded that one of my co-workers had a lesion on his tongue removed five years ago and is fine. The co-worker lost quite a bit of �extra� weight during treatment and has kept off and looks a lot better now than before.
So, add a 14- and 5-year survivor to the list of people who gotten on with their lives with little problems other than dry mouth.
Along with this website, these two people added great support during my treatment.
57 @ Dx, Stg IV BOT (1.5cm), lymph nodes (lrgst 2.5cm), non-smoker, casual drinker and exercise nut, Cisplatin x 2, Erbetux w/IMRT x 35/70Gy, PEG, Treated in San Antonio @ CTRC 12/16/08-1/27/09.
3/5/09-CT
6/12/09-PET, PEG out
12/1/09-CT
12/6/10-PET
12-8/11-CT
1-4/13-CT
(all clean)
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Mary u,
Why would becoming a total larygectomee make him unable to speak? I had the surgery in 2001 and can both eat and talk just fine with the normal food restrictions due to dry mouth. Actually, the surgery allowed me to eat many foods I couldn't eat before because I no longer could asperate food. I have a TEP which allows me to speak. If that wouldn't work, then he could use an electro-larynx. If you want to talk, I'd be glad to give you my number, however, I am on vacation until the 12th of August.
Hey guys, don't I qualify as one of the longer term suvivors? And don't forget Brian.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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