| Joined: May 2009 Posts: 114 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: May 2009 Posts: 114 | After the first week = 5 doses are people generally able to carry on normal activities. People at work want me to attend a Music Fest with them on August 7, the day of my 5th rad treatment. My hobby is photographing musicians. They have set up rooms and done things so I would be comfortable. Some say I won't be able to and others say that early I wont even know I am being dosed.
I don't know dosages but 40-55 in back of mouth and 50 -70 in front.
I was wondering IF I could drive to West Virginia that weekend.
Wishful thinking?
Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
| | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | While things are individual the first and second week are normally non events**. Especially if you have no or just a small dose chemo. (so much so that one wonders.... so is that it? but it catches up later on...)
Are you getting a PEG as well? It will take some time to get used to that.
** of course there is the psychological component to consider too.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | I was told first 2 weeks you feel pretty good but the 3rd week is when you start to feel it....then again I was told by people who have never gotten treatment!LOL
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Mar 2009 Posts: 109 | For me the last 2-3 weeks were really harsh, but the first 1-2 weeks were absolutely fine. But as my doctors always say, everyone reacts to these things individually.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | With the usual disclaimer that everyone is unique: my experience was that the first two weeks of radiation were a breeze. I had not trouble driving, going out to resturants, even exercising at the gym. I had not yet found OCF so I was in for a very rude awakening the remainder of my treatment. PS. Ask your radiation oconologist what your total treatment dosage is. The standard measurement is GY, each of which is 100 Rads (old measurement). The typical aggressive treatment is 72 GY. More than that can be very problematic. You might also ask the average dose planned for each week. My first round jumped up tremendously the last two weeks. Finally, the worst part of radiation is the time afterwards. 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Apr 2009 Posts: 22 Member | Member Joined: Apr 2009 Posts: 22 | Hisnibs, Eat, Eat, Eat. And listen to all the folks here they know what they are talking about.
Dx: SCC lateral tongue April 09, Stage T1M0N0 PET scan clear April 09 Partial glossectomy April 09, no carcinoma present IMRT started 7/9/09, finished 8/26/09 PEG inserted 7/30/09 PEG removed 9/25/09 ER Nurse
Keep the rubber side down....
| | | | Joined: Apr 2009 Posts: 104 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Apr 2009 Posts: 104 | John had symptoms right away--first day weird taste and some salivary changes, by third day nausea that hasnt' resolved since, and he completed rad tx on the 14th (even with trials of various meds, feedings, etc). That doesn't seem to be the usual, though, from what I've read on this site. Everyone's situation is a little different, though--hard to predict! Best of luck.
GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
| | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Well here she comes the harbinger of doom lol.I posted a message ..CAN IT ONLY BE THREE DAYS? Robs skin was burnt,his mouth was burnt and all his plans to work every day up until he went for tx lasted 2 days.
I know he was not the norm,but thats the whole point.There is no norm,and no one knows till it happens .
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: May 2009 Posts: 132 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2009 Posts: 132 | Hisnibs -
I'm on week 3 of my radiation treatment, and it's my first week of discomfort, pain, and fatigue. Weeks 1 and 2 were, relatively speaking, a breeze. Why not plan to go and then see how you feel on that fifth day? You can always decline at the last minute -- everybody would understand.
Good luck with your treatments. I hope they go well for you!
Chrissy
Stage 2 SCC upper right palate Hemi-palatectomy and maxillectomy 5/28/09 Six teeth gone IMRT x30 starts July 13. Completed 8/26/09 Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
| | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 718 | The first two weeks went relatively well for Dan. He took a biz trip by plane after the first week. One big variable is chemo, are you getting chemo? If so, what is the type and frequency of your chemo treatments? Margaret ---------- C/G: Husband, 48 (at time of dx) Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3) Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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