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Joined: Aug 2007
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Joined: Aug 2007
Posts: 42
I just got messages on facebook from Megan and Christine about this! I wish I had been checking the board latley! I've got a bunch of last minute reviews coming in now thanks to facebook!


Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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Amy, Thank you!!!!!

Your mom would be very proud.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: May 2007
Posts: 666
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: May 2007
Posts: 666
No no, not devious, but remember part of our brain did actually get irradiated. This is my story and I am sticking to it. I wonder if this could be used later on.....

You are of course right; still 176 (+/- a few) is not that great.

M


Last edited by Markus; 07-31-2009 07:33 PM. Reason: stray photon killed a grammatical synapse

Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Okay, even though it is now August here in Eastern Standard Time, the polls are still open for two and a half hours more since the contest runs on Pacific Standard Time. so you night owls (EST) or evening posters (PST), please vote now. Oh yeah, Mountain and Central Time zone votes are welcome too
We are tied for last place in our category - Guests who are not registered are welcome to vote. Heck, even the "spiders" are invited ;)Just click here: Midnight votes
Charm

Last edited by Charm2017; 07-31-2009 08:26 PM.

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
It's like election night jitters. Only THIRTY MINUTES LEFT
current scores: we are now SECOND by a thread. Keep voting.
Best of West/Pacific

WESPARK CANCER SUPPORT CENTER
Sherman Oaks, CA
212 Reviews

THE ORAL CANCER FOUNDATION
Newport Beach, CA
187 Reviews

PEDIATRIC CANCER RESEARCH...
Irvine, CA
185 Reviews

Last edited by Charm2017; 07-31-2009 10:26 PM. Reason: typo

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
IT'S OVER BUT THE SHOUTING (HENCE THE CAPS) OCF PLACED SECOND FOR BEST OF THE WEST. YET WITH 188 VOTES WE HAVE MORE VOTES THAN ANY OF ALL THE OTHER GROUPS IN THE OTHER FIVE AREAS OF THE COUNTRY. Okay, normal tone: Thanks to all who helped.
You will note that my wife entered the last and final vote for OCF under her screen name of Zinniabee. Family effort.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
You can quit voting now. while two people posted reviews after my wife's last valid vote for the contest review, they are clearly dated August 1, 2009 so they do not count according to the rules. thanks for the thought though.
I see the Great non profit site though has an automatic counter and lists the 190 but I think that won't matter anymore than their typo having July 30 as the cut off that Rosie noticed. Somewhat sobering that we could only muster 3% of our members to vote, while 97% chose not to participate. Do we really have only about 200 active members? That would explain a lot of the fund raising issues,
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Oct 2006
Posts: 209
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Oct 2006
Posts: 209
I believe this was quite a success.
Many members who have not visited for quite some time have been reminded of how much this site meant to them.

Members urged family and friends to vote. Those people have now heard about oral cancer for the first time or been reminded of it because of the request.

Competitors for the prize could not help but learn about Oral Cancer as they were tracking their counts.

Members who assisted those who would have liked to vote, but could not, likely gained additional perspective by putting into words what another might wish to say.

This was a great way to get the word out. It did not cost a lot of money.

I don't see this as a failure with a 3% participation rate.
I see the glass half full with who knows how many people newly exposed to the phrase "Oral Cancer Foundation"

I did not do very much. However, I contacted a few relatives, our dentist and one co-worker, who in turn contacted a couple dozen others. My lazy attempt resulted in a net exposure of likely 3 dozen or more people that now have heard of "Oral Cancer" in the last couple of days.

Now it is time for me to make a donation. I have been selfish and not participated in comparison to how I was on the recieving end of OCF.

Ginny

Last edited by MikeG; 08-01-2009 08:06 AM. Reason: typo

Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
Joined: Aug 2008
Posts: 48
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Aug 2008
Posts: 48
I got an email or I wouldn't have known. I think you did good. keep up the good work.


cancer surgery on July 7th. 2008, I'm now a survivor. cancer free for now. 39 radiation, and 8 chemo treatments.
Joined: Oct 2002
Posts: 546
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Oct 2002
Posts: 546
Ginny,

I was working on a post saying pretty much the exact opposite of yours - how 3% was dismal, especially since many in that 3% weren't even OCF users.

But I like your post better. Glass half full is always better than half empty. I will just add "ditto" to yours!

rosie


Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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