| | Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) |  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,916 Likes: 63 | Rosie.... please do not ever apologize to me for anything. You have always been one of OCF's strongest advocates, and been willing to tell your family's story when media opportunities have come up. Something that I am sure must bring back significant pain, but which you are willing to do anyway. I personally, and the cause, will always be in your debt.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Proud to have just posted my review!!  I am blessed to have found you all!!! THANK YOU!!! Edited to add: Thank you for the bulk email re: this or I might not have seen it in time!
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | ginny,
Yes, please use it any way you see fit. Just be sure the links copy correctly.
When i was posting on Motley Fool, the main link didn't copy right and it connected to a Firefighters Cancer group. I think that might be why the one guy did a 3 star review. He read my correction post, but maybe didn't fully read the original post.
My 3 grandkids are spending the night tonight, so I won't be on the computer much. I will try to think in once or twice, but I'm pretty much out of it now.
Good luck!
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Rosie,
Great to see you back. Your sure are a mover and a shaker. I've missed you.
I hope things are going well for you.
Thanks for all you do.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Hi Jerry, Things are going okay. Glad to see you finally got the business sold. By the way, I am "thinking" in for the first time, while the kids are eating. What a typo. I guess I was really "out of it"! Ha! 
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Six hours left to vote. Hurry, we are now in LAST PLACE for the West category. Only 154 reviews. Rosie has spelled out what you need to do. Click here and give us 5 stars, click yes for cancer fighters. and VOTE LAST CHANCE TO VOTE FOR OCF I could not wait for my nightly insomnia post, that'a how important this is. Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Sep 2008 Posts: 130 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2008 Posts: 130 | IF someone WANTED to use the same computer to write more than one review. SOMEONE COULD go into their TOOLS and clear the cookies out of internet explorer. In theory SOMEONE MIGHT do that a couple of times. Say your children could right a review. You do need a different email address but it does not need to be valid.
Last edited by AmyK; 07-31-2009 04:42 PM. Reason: typo
40 yr old. Stage IV SCC found left tonsil. PET/CT shows cancer on base of tongue, floor of mouth, lymph nodes on both sides. HPV 16 pos. 6 weeks of cisplatin, 43 days of radiation. 73gy on each side.
ND March 2, 2009
reoccurance dx'd Aug 19, 2009
| | | | | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Well this is unfortunate. My mother wanted to write a review and does not have a computer, so she used my laptop hooked to our home wireless netwok. It just will not post.
On the up side, my co-worker was succesful in posting her review tonight. She was even kind enough to mass email everyone else that was still on-site on my behalf. Being in her 20,s she had no idea oral cancer can strike at any age.
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | WOW....we are so close....only need 26 more to take the lead Great joint effort!!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,916 Likes: 63 | You guys are devious.... but if we get positive strokes, they should be for real. We should stand on our merits, not our ability to figure out how to manipulate the system. Besides, I'd rather have half as many sincere heartfelt reviews than a ton of two sentence takes from someone who as only a collateral contact person with OCF, that might leave us 3 or 4 stars which has happened a couple of times. Your hearts are in the right place, just remember that if you win at something without honor, you actually haven't won. So getting friends on board that understand what you have been through is OK, double posting isn't a good thing
I've read some of the competition's reviews, for sure they are shallow comments by people not actually served by the organization, and they are beating the bushes hard in the 11th hour. They read like hollow shadows, not a person who really understand personally what it means to have people - like all of you - help them when they needed it. If that's the best they can do, and they win by doing it, then I believe we still came out in front.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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