| | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | David you do not need a valid email address... but you need to do this from a different computer.
..... so back to work!
M
Last edited by Markus; 07-31-2009 08:23 AM.
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | That is correct. I could not do my husband's review on my computer. I could do it on another computer in the house networked to mine, though.
Got another review from a Motley Fool member. Amazing! It's hard to believe that I can get a stranger to help, but can't get more people from here to help.
Anyway, we're up to 147. Spirit Jump is at 165, though, so if they are in the same budget category, we still need more to get that award.
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | | | MeganCannon Unregistered | | MeganCannon Unregistered
| As I said before and I will say again, thank you thank you thank you! You all have done an amazing job campaigning for OCF! We still have until 11:59pm PST to get more reviews!! Currently we are only 38 reviews behind The Pediatric Cancer Research Foundation and 17 behind the 2nd place non-profit, Sprint Jump. As stated in the rules they will choose several winners based on budget size and geographic location. We are SOO close to being the top non-profit and we have a little over 13 hours to achieve that goal! I just sent out messages to friends of mine on facebook that know what I do and a little about the foundation. Although the majority of them have never been impacted by oral cancer they know more about oral cancer and how it's contracted through me. OCF has spread awareness to me which in turn has spread awareness to my friends and family. Thats all it takes to write a review. If you have facebook or myspace pages or emails of friends that know what you went through encourage them to write a review as well. YOU are their direct connection to us. So 13 hours... Im hoping we can make a difference in that amount of time.
Thank you all again for everything,
Megan
P.S.- I would also like to add, even if we do not make it to the top this is in NO way a wasted effort. All 147 reviews are extremely valuable to us. Im saving every review for our archives. These personal statements on OCF are now an extremely helpful for us to express to others the importance of our foundation. This is proof. | | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I emailed a few oral cancer members that never sign on anymore and asked them to write a review. I see at least one of them did and another had already written her review. I too can't believe how few people have responded to this. Come on guys, only 11 hours left. And thanks Rosie for your help.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Hmm...
I guess I could try to motivate some of my students.
Lets see if any of them want actually want to graduate...........
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Just make sure they give OCF 5 stars.
Our perfect 5 star record has been broken by someone who only thought OCF was a 3 star organization.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Yes, I saw that and I'm afraid it might have been one that I solicited. If so, they did not read my entire appeal. I specifically said they needed to give 5 stars. I guess that is the risk in asking strangers. I am sorry.
At least our star rating is no worse than our 2 main competitors. Neither of them have a perfect 5 stars. Even so, if it was one of mine, and I'm pretty sure it was, I am very sorry.
I see some of Megan's friends have responded with a review and one of the old OCF people that I emailed also did, whether in response to my plea or Eileen's, I don't know, but all that matters is that she did.
The only negative aspect of this is that a lot of the reviews from non-OCFers are brief and impersonal and won't be useful for other purposes, but surely anyone running a contest like this would realize that sort of thing would happen. I feel bad, but also feel it was unavoidable. It is one thing to ask someone else to write a brief review to help. It is quite another to ask them to write a heartfelt review on a subject they are not even familiar with.
Last edited by rosie; 07-31-2009 10:42 AM. Reason: add more info
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Rosie,
The plea that you posted on Motley is stated better and simpler than my attempts to explain.
Is it ok to copy and I will forward to my email contacts?
I will personalize it and acknowledge that you are saying what I would like them to do.
ginny
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I sent a request for help to Amy (Minnies daughter) and Lisa (Pattys best friend). Im sure both will help.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Amy is my friend on facebook. I sent her a message on there. I will let her know you wanted to contact her.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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