| | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Jan 2009 Posts: 216 | Colleen - I'm thinking of you, your mom and your family, and keeping you all in my prayers. ((((hugs))))
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
| | | | | Joined: Aug 2008 Posts: 96 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2008 Posts: 96 | Colleen,
I'm so sorry for you and your whole family. Don't waste a minute! Will keep you in my prayers.
Lori
Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Colleen, I am so sorry for what you are going through. Will keep you and your family in my prayers!
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Mar 2009 Posts: 48 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Mar 2009 Posts: 48 | I am truly grateful for all of your thoughts and prayers! They seem to be helping. My Mom is in a wonderful facility with a wonderful/caring staff and great/compassionate doctors. She is comfortable and seems to be at ease about her current situation. She is awake and we have been able to talk and say all of things that need to be said. I really never imagined having to say these things, but I know that it will comfort me when I think of her. Thank you all again, keep sending those prayers so that my Mom can go peacefully!!!
26
Mom 48 diagnosed Sep 08 Stage IV SCC
full glossectomy, neck dissection traech and peg Nov 08
35 radiation treatments and 3 chemo
Mar 09 mets to lungs
Started Erbitux 3/09/09
06/26/09 mets to rib
Stopped Erbitux 6/26/09
Start erbitux/taxol 7/06/09
Started Hospice 7/24/09
Passed away 8/09/09
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | If your Mom is alert enough and you find the hours are dragging a bit - remember the photo albums are a great way to relive happy times. People DO take pictures at happy times and if she has the energy she might be able to share some additional stories with you about the events in the pictures.
I know I hope that this is something I can do with my kids. Once I get the albums utd that is!
Time spent holding her hand and chatting is invaluable. I am so happy you are there for her. Sounds to me that you mom is at Peace. That is a glorious state of being. Enjoy it with her.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Sep 2006 Posts: 49 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2006 Posts: 49 | Colleen,
I trust you are finding out what angels Hospice nurses are. They were here with us during the suffering of our daughter's final weeks and each one of them was such a blessing. I'm so sorry that you are going through this - I know how horrible it is. I echo the recommendations of those above to just spend as much time close to your mom as you can. Hold her and tell her how much you love her == and how much you will miss her. She can hear you!
God bless you and your family.
Bonnie
----------------------------
Caregiver daughter Teri, age 43, mother of three, non-smoker, non-drinker, aerobics instructor, SCC 4/06 SCC lateral tongue, partial glossectomy, mod rad neck dissection, 35 IMRT; metastatic return 4/08 to lung, bone, kidney. 10 additional radiation to lung, 3 Docetaxel + Carbo, lost her battle on 9/29
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Always thinking of you Colleen.....
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Colleen,
I know only too well what you meant by "hoping for a miraculous recovery" because I am hoping that miraculously, this will never come back to haunt my mom again. I'm so sorry to hear about your mom and want you to know that I will be keeping you and your family in my prayers. A very old preacher once told me that you die when God is ready for you, not a minute before nor a minute after. Like some of the others have said, please use this time to spend with your mother and let the love between you just flow.
Nancy T.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | NancyT,, that is one thing I believe in for sure, or I would have been dead a long time ago and never experienced OC. I will take the PC and whatever else gets thrown at me in the next few weeks and keep right on living and smiling.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | OOPS,, When God wants me, I will go without any choice , but not before.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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