| | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Megan, Thanks for the email. Since I don't visit the website often, I wouldn't have known about this, if not for the email. I just posted my review. As I was browsing the other reviews, however, I found that OCF wasn't included in the sites listed in the "cancer" category. Don't know if that has a bearing on OCF being in the running for the award or not. Just thought it was logical for OCF to be included in that category and was surprised to not see it there. Also noticed that there are only 2 organizations with more votes than OCF. Of course, there could be others that should be there and aren't(in the cancer category). If 40 more people would write a review, we could possibly take the lead. C"MON PEOPLE! Write that review! It doesn't have to be fancy or long. Browse a few reviews first to get an idea of what other people are saying, then just do it! Yes, a long, detailed review would be great, but a simple one will suffice. Anything is better than nothing! Please? Do it for yourself. Do it for Brian. Do it in someone's memory. Just please do it. Hugs and rainbows  rosie p.s. It might be a good time for a small donation also. I must admit I get caught up in life and forget to donate as often as I should, but a reminder like this usually gets me moving. I will be donating tonight . I invite you to join me.
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Hi,
Me again. Okay, I went to the actual contest site and saw that we are second for the West/Pacific Region. 18 more reviews will tie the leader. Of course, they will be looking for more reviews also, so more than 18 is needed.
Also, it was stated that July 30th is the deadline, not the 31st. So, unless they had a typo, there are ONLY 2 DAYS LEFT!!!
Last edited by rosie; 07-28-2009 07:26 PM. Reason: fix typo
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Ok,lets get off the couch and get this done!! 
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | WooHoo, 2 more reviews just since I posted mine.
Way to go!!!
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Rosie
Once again you come to the rescue. I think July 30 is a typo as the rest of their web site and the rules all say July 31. At 88 reviews, we still need a lot more to win here.
Megan
I was very relieved to see that most people must have gotten your email. I know I am registered and have gotten OCF emails before, but had seen nothing until I checked my SPAM box. SO HEADS UP PEOPLE, CHECK YOUR EMAIL SPAM BOXES AND MAKE SURE MEGAN'S EMAIL IS NOT THERE.
Charm
Last edited by Charm2017; 07-28-2009 11:36 PM. Reason: spam warning
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Charm, You are right. It does say July 31st in the rules. Odd that it is July 30 on a main page. We're up to 91, but still need AT LEAST 15 to take the lead. I was going to have my husband write a review, but guess he would have to do it from a different computer, because he got a message saying a review was already posted when he went to do it. So I guess it isn't really one review per person. It is one per computer. I'm sure it is their way to keep the contest honest, but still was disappointing. He knows how much OCF helped me and wasn't even too disgruntled when I asked him to do it! I wonder how many people there are like me who used to visit the forum, but don't anymore. Even though they may have chosen not to receive the emails from OCF, I bet there are some that would write a review. If anyone here knows of anyone like that, maybe they could shoot them a quick note with the contest link. Hugs and rainbows rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Okay, gotta go to work now, but just had to post that we're up to 93! Thanks guys. And thanks in advance to those who have yet to write their review. hugs and rainbows, rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Just posted my review this morning! I hadn't checked my home e-mail in a good while at home as I've been at the hospital or work most of the time. My sister got it though and forwarded it to me and we've both passed it on to as many people as we could think of hoping to get more reviews. And... I changed my email address from the home one to the work one on my profile... lol.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Aug 2008 Posts: 48 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2008 Posts: 48 | I tired to post a review, They said my email address is wrong. I went back to my profile and made sure I was useing the right one and tried again, won't let me in, but I'm here?
Rubyann
cancer surgery on July 7th. 2008, I'm now a survivor. cancer free for now. 39 radiation, and 8 chemo treatments.
| | | | | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Okay, guys, kudos to those who have posted. We're up to 101. Unfortunately, the Pediatric group has been busy. They have added more reviews than we have, so now we are further behind.  Don't despair, though. Keep writing those reviews. Even if we don't top them for the regional award, we could have a shot at one of the other 3, based on budget. Unless I am reading it wrong, it looks like there are only a few groups ahead of us overall. I have no idea what their budgets would be, so don't know who our competitors are, but I would say we have a pretty good shot at one of the top spots. Soooooooo, keep on writing!!!  Go! Go! Go!  rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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