| | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) |  "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Sue
thank you so much for understanding exactly where i was coming from with my origonal post,
i too am done with this.
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | My MO was my PCP for the first year and they are truly specialists in managing body chemistry. He managed all of my meds. I also took anti-anxiety meds throughout Tx. I refused the anti-depression drugs because I felt it was "situational" depression and not chronic depression and I didn't want to screw up my brain chemistry with Prozac. Antidepressents are often prescribed in the US by less than qualified doctors and then the monitoring required is also not performed.
I do have to state here that depression is a common and well known side effect of cancer therapy, however.
Drugs in general are overprescribed in the US today and that's one of our major health care issues.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Situational - thats a great word Gary and in my opinion sums up the problem brilliantly.
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jul 2006 Posts: 68 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2006 Posts: 68 | I know the feeling.I have been having problems the last 6 months or so.I am coughing so bad all the time,my throat is so sore,dizzy oh yeah and can't keep anything down.I am in year 5,but it's like everything is going wrong>It's like everything in my mouth is swelled,my ENT won't see me until i get enough money up to in to see him.I just pray every night that nothing is wrong and hope i get the money soon.I am scared and my kids just don't listen to me because they don't want to talk about it.It's been awhile since i have been in hear,but anyway it felt good to vent alittle.
lynn
linda anderson
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Sue,
Aren't there any public health clinics available? I got one of my employees seen and treated at Moffitt, a CCC, without money or insurance. It's a hassle but doable if you persist.
Hell go to an ER that won't refuse you without payment.
Last resort, call a newspaper and tell them your story, i.e. cancer survivor with similar symptoms recurring and your cancer doctor (his name in BOLD LETTERS) refuses to see you without cash up front! I bet you would have an appointment the next day.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Great advice, David! Sue you should definitely be seen as soon as you can so you can quit worrying. Stress isn't good either.
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
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