Rex has his follow up appt tomorrow with all the drs. I am really kind of scared and not sure what to expect. I know that we have had a lot ups and downs during this entire ordeal. I thought that treatment would be done and he would be better. That's not the case at all. He is still so tired and in pain. He sleeps alot. Now he has to sleep sitting up or he feels like he is chocking, so I am sleeping on the floor.
We have been to the emergency room do to the problem with breathing. He says that everything sits in his chest.
He is allowed to have water but nothing else by mouth. He is on his feeding tube. I am in hopes tomorrow they will let him start eating. Not sure how quickly that starts.
Thanks
Pat