 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Jenka , it's all part of our misery from the after affects of the surgery.Yes sometime it feels like burning pain and sometime not. It's been LONG TIME FOR ME, BUT i LIVE WITH IT DAILY AND THE MUCOUS CAN WORRY YOU TOO. Sorry about the caps LOL I am no typist
The best thing I know to tell you is to try and occupy your mind when this stuff starts its acting up. Get the Magic Mouth Wash because it does help some.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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